Mum has psp and dad is her main carer I stay 3 nights a week to allow dad to go out. He's very low in mood and I can't get him to open up, very proud man. He or mum not had a holiday for over 5 years so I've decided to take them away for a week to Yarmouth, I've found a chalet that's on one level and wheelchair friendly. Dad was over joyed by me booking this. I'm beginning to stress if I've done the right thing I've had to make a list of all the things mum needs catheter equipment peg syringes pressure cushions for chair extra pillows to prop her up the list is endless. Mum has deteriorated over the last 2 weeks no longer communicating, continuous infection in peg site. It's a 4-5 hour journey which may be too much for her. I'm keeping everything crossed it will be ok it will be lovely to build some nice memories
Holiday: Mum has psp and dad is her main... - PSP Association
Holiday
Good on you! Expect it will be hectic and you will be exhausted by Day 1! But don't despair. It is a great thing you are trying to do. Took my hubby to a resthome for respite care where my dsughter in law and my son could help look after him. Yes. There is a lot to put in the car (dare I ask if you need a trailer too with 3 of you!) I had all of back seat and boot packed just for him. It took for ever to pack. And we had to toilet hop, lunch stops were very long as took so long to get from car to table, etc.
So .... involve your dad - he obviously thinks it's a great idea. Pack as much as you can the night before - and that may not be much - write lists and tick off! No doubt teaching grandma to suck eggs here! See if you can get a referral from your dr to a local gp at holiday venue just in case you need one. Plan the first dsy's 3 meals before you leave to try and give yourself time to catch up. Then go shopping as a means to destress.
If you have brought up children of your own, it will be like managing the whole family at once. If you have never done this sort of thing before, hang on to your hat, take a deep breath, and go with the flow!! If you can.
It will be worth it for all of you to experience a holiday. Guess thectrip will take longer than you expect. See if someone you trust could help out eith end to get you packed and unpacked.
Once you sit down and nut it all out, things are likely to fall into place. Hope all goes well.
Oh. Don't forget the bottle of wine, and other favourite beverages - and some chocolate!
Hugs! Will be thinking of you! Jen
ps don't forget something to do if it rains!
I echo all Jen has said. Your parents are blessed to have a daughter who stays 3 nights and wants to take them away. Well done you!
I hope you get a change to relax a bit while you are away. As Jen said, go with the flow.
Best wishes.
X
Thankyou for your valued advice, good advice about registering with GP down there (just incase) xx
Well done Richmond!
I looked at taking dad to the grove in Bouremouth a few months ago but Psp beat us on doing this 😓
So I would encourage you to carry on and 'do it'!
I'm gutted I've not been able to take mum, dad and myself away for a break and would advise anyone that can, to do it before it becomes too difficult/impossible
I'll be very interested to hear how it goes, I think your brave doing a 5 hour journey, And I wish you lots of happy memories x
My son and his family live in Great Yarmouth so I know the area well. We were visiting 5 years ago and Steve had 2 falls in the street. We took him to the James Paget hospital whose staff were wonderful. It was due to the nurses advice that we started on the route to the Drs for diagnosis. The main reason for this post is to reassure you that there is a wonderful hospital if needed nearby. Enjoy your holiday and rest assured that help is there if needed (hopefully not)!! xx
Dear Richmond you are one great daughter. Make lists and tick them as you go. At some point you may think "why did I think this was a good idea" and feel stressed, but just think of the happy memories you are creating for your mum, dad and that is a blessing no amount of money can buy.
Hope you all have a nice time.
Lots of love, Nanny857 🍦🍦🍷🍷☀️☀️
Good luck to you. Yes transporting one with disabilities is very time consuming but it can be so rewarding. And knowing that your dad is already happy shows that the its worth it!
Have fun
AVB
Ive done a list just when i think I've got everything down I remember something else usually about 2am in the morning lol, which tells me I'm anxious about it. I will be more settled once the journeys over and I know the accommodation is suitable. My husband is travelling down the day before to check everything out.
I'm a nurse I can do this (or so I keep telling myself) I really can't understand why I'm stressed about it, but then I remember how frail mum is and answer my own question and hope the holiday is not too much for her.
One thing that reassures me is I've got this group and all you amazing people if I need advice, nobody else can understand what psp is like us xxxxx
Leaving PSP sufferers on their own
Advanced/end of life stage
Given Up
Just been diagnosed 
