Something prompted me to think about full anaesthetics and PSP.
I can't remember where we got this from, but I have it in my mind that administering a full anaesthetic can lead to a large step down in PSP people's functioning.
Reading back posts that seems to be the accepted wisdom.
Does anyone have knowledge or experience of this please?
Thanks
Kevin
Mum has CBD. She prolapsed her rectum back in January. They were unable to get it back in manually while she was awake so had to give her a general to manipulate it back. I doubt she was under very long and they would have ensured this as Mum has several co-morbidities. I have to say in her experience all went well but the last couple of months have shown marked deterioration. Coincidence....maybe, who knows. I would say only go under if there is no alternative.
Hope that helps
Sharon
Our friend Strelley, who has left us, had a good answer to this question. I asked it because the urologist was proposing a general anesthetic for my guy. Strelley said the real danger of brain damage could come from the lowered body temp the surgeons induce during a procedure, and he recommended discussing the risk and ways to minimize it in advance of any surgery. We went with a local, which turned out to be fine, of course, my guy being very good with pain.
Thanks - Liz told me to look for a 'Strelley Post'. I couldn't find it.
That's really helpful.
I think we need to discuss this with our neurologist on our next visit as well.
He's a specialist in PSP. I'll come back with his answer. We see him at the end of August.
Strelley, alas, is now hidden, so his posts can only be identified by people replying to him and by the expert content. Tragically, he was diagnosed with an aggressive cancer just after his wife died.
EC, OMG I did not know this. How awful! Does anyone hear from him?
Not that I know of. It's so sad. He and I exchanged a couple of messages after his wife died and he told me he wasn't optimistic about his treatment, and shortly after that his account here was closed and his posts hidden.
I'm really worried about peterjones now.
I have been thinking about Peter for quite some time as well. Wish his wife were on here and could let us know what's up with him.
I send a message to him every now and then. He had a grandson who did his computer stuff for him, and I keep hoping sometime a message might be found. I wish we knew his real name. I can't think of a way to find him.
Thanks ec
A miracle! I just got a " like" from peterjones on one of my replies! Yay!!
That's brilliant. If you are reading this Peter Jones, i miss you and sending you a huge hug and lots of love.
Heady
Me too!
Thanks for letting us know. He was sp often quoted in this house. Such a shame his pots are hidden.
Thankfully, his posts actually aren't hidden, just the identity of the poster, so if you search for "Strelley" you find the replies where he is thanked by name, and you can still access his contributions. At least some of them!
Thanks ec
There are issues with anaesthetic and neurological conditions but especially PSP/CBD/MS you need to ensure the anaesthetist is aware of the condition before the procedure if not happy make your concerns known to the surgeon who should see her before the operation. Contact PSPA help desk who may be able to help with some literature for the professionals on the special needs for PSP care in the hospital.
Tim
Thanks folks. This is something I had not even thought of before. Bugs needs to have an operation to rearrange the cartilage inside her nose - to undo the damage she did when she fell face down in early may. The ENT chap said it would need a general anaesthetic. Fortunately he said he would not consider doing anything until at least 6 months had passed. With hindsight, I wonder why he mentioned the operation, knowing her diagnosis but 20/20 hindsight kicking in as I type - he said he had heard of PSP but that I probably knew a lot more about it than he did.
Way back in 2006 I had a an operation to remove a lump on my left kidney. all apparently went well It was about 8 months afterwards when I started to show signs of parkinsonisms have never really put these together before but is it just coincidence? Maybe but we will never know.
My husband has had many general anaesthetics for various different surgical procedures over the years and we wondered if they could have contributed to his PSP. Recent surgeries (hip replacement for one) he has had done with an epidural, after finding some evidence that ia general could cause a decline in his condition. And our neurologist suggested avoiding anesthesia if possible. He recovered so much more quickly from the grogginess aspect of surgery and the time in rehab was great! For me, and for the attention he was given. Ask the anesthesiologist/ anaesthetist if there is an alternative to a GA. Why risk speeding up the decline if you can avoid it.
Good luck with whatever you decide.
Finoni
Thanks Finoni
I never thought of epidurals! So glad you managed to avoid Gen. Anaesthetics last time.
That's really helpful information.
We had one close call at the dentist. I am not good in the chair and used to have a full anaesthetic. We told the anaesthetist that we thought it was inadvisable because of PSP and he said 'No point in taking the risk then'. I expect if it were in a hospital they would check it out properly. In the end Kevin did light hypnosis on me. When we got outside afterwards he told me he was anxious about that in case he put the dentist under too!
I am due for a checkup at the dentist next week.
(My typist Kevin_1 agrees and says thank you - We are doing my posts at the minute).
All the best
Liz
S has had to have a back op and a knee replacement, before diagnosis, but after his stroke, when all his symptoms kicked in. Never came out the same, certainly after his knee op, his symptoms got a lot worse, but that could have been because that's when I stepped in and started doing physio with him, for his knee and realised how bad his movement had become! Or those few days in a hospital bed, immobilised! I know Strelley, who EC has mentioned, said it could affect the swallowing, due to the tubes down your throat. Which makes sense.
I suppose the moral is, only have an op if it is essential, but who's going to go in for a face lift or a boob job, when suffering with PSP!!!
Lots of love
Heady
It's so hard choosing in the dark!
Thanks for the smile though... I guess I won't be having that bum lift any time soon then!
Hugs
Liz
(Typed by Kevin)
My husband had Parkinson's from 2003. He had a knee replacement in 2011 and started having PSP symptoms afterwards His op. did not go well due to an infection. He needed another to try to clean out the infection, and when that failed, another op. , to put in a new knee. We saw the surgeon recently. Despite being a top surgeon, he had no knowledge of PSP. I gave him and his student a PSP card explaining the illness. They were pleased to receive it. X
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