Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for June 2016

Exercises For muscle memory

Since we haven't been able to get to the gym for the last 6 weeks B seems to be forgetting how to use his muscles. He is "freezing" to the floor more and more...

Since we haven't been able to get to the gym for the last 6 weeks B seems to be ...

•8 years ago

Struggling a bit here

No Marie Curie nurses for two weeks now as they have had an influx of palliative care cases so 4 nights a week on call with V's erratic...

No Marie Curie nurses for two weeks now as they have had an influx of ...

•8 years ago

advice

Hi All Does anyone know of something that could help my wife with her thick feeling in her throat, it has been getting worse over the past week, and...

Hi All Does anyone know of something that could help my wife with her th...

•8 years ago

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Another angel

This morning heaven gained another age our Mum. Psp robbed her of her sight, her speech, her mobility and over the last two weeks put her in a comatose state....

This morning heaven gained another age our Mum. Psp robbed her of her sight, her...

•8 years ago

Depression and therapist, does it help?

Hello Everyone! Does anyone take your loved one w/PSP to a psychologist or psychiatrist to help with the depression? My sister has on numerous occasions has...

Hello Everyone! Does anyone take your loved one w/PSP to a psychologist or psych...

•8 years ago

PSP and pressure ulcers " bedsores"

My brother complained that he had area on his back that hurt and burned I checked him and sure enough it was a start of a bedsore, when he sleeps he can only...

My brother complained that he had area on his back that hurt and burned I checke...

•8 years ago

Any advice on Lactulose

Liz suffers the usual difficulty in moving her bowels because she spends so much time sitting. She started Lactulose at 15ml a couple of moths ago and it...

Liz suffers the usual difficulty in moving her bowels because she spends so much...

•8 years ago

Sorry about last night...

I am rather embarrased by my lack of self control....though I can't deny what I said I sure am embarrassed.......It's been a hard month folks ...I hope I...

I am rather embarrased by my lack of self control....though I can't deny what I ...

•8 years ago

Hospice experiences

Hello Just wondering what everyone experience of attending day unit at hospice are. My Mum went last week and I went with her but they prefer that patients go...

Hello Just wondering what everyone experience of attending day unit at hospice a...

•8 years ago

Sick mom scares kids.....Do we have POA etc?

I have been terribly sick the last few weeks. Kids have had to help me with dad (B). My eldest keeps asking amid my illness, "Have you filled out these forms...

I have been terribly sick the last few weeks. Kids have had to help me with dad...

•8 years ago

EPOA- Enduring Power of Attorney. What I have been told!

Have been banging my head against a brick wall with this! Doctors still think my man is capable of making his own decisions. They were not available at the...

Have been banging my head against a brick wall with this! Doctors still think my...

•8 years ago

CBD - What was that comment about rollercoaster ride?

Have had a rough few days with my man, very sleepy and not eating or drinking much. Nursing staff decided not to monitor fl ids or food intake and I knew his...

Have had a rough few days with my man, very sleepy and not eating or drinking mu...

•8 years ago

Catheter Associated Urinary Tract Infection (CAUTI)

Sounds like a case of "doing a job" versus having a "vocation" Where is the kindness, care and simple good manners in dealing with some one less fortunate then...

Sounds like a case of "doing a job" versus having a "vocation" Where is the kind...

•8 years ago

Hospital

Well we were up early to get George to the hospital in London, which took us nearly three hours, looking for disabled parking in the borough of Westminster,...

Well we were up early to get George to the hospital in London, which took us nea...

Yvonneandgeorge

•8 years ago

A petition for Homa Hoodfar

https://secure.avaaz.org/en/petition/Supreme_Leader_of_Iran_Ali_Khamanei_We_call_on_you_to_secure_the_release_of_Homa_Hoodfar/?sNgWBeb Sorry to everyone who...

https://secure.avaaz.org/en/petition/Supreme_Leader_of_Iran_Ali_Khamanei_We_call...

•8 years ago

So quiet lately

This was the first week that my guy has been very, very quiet. He says he just doesn't feel like talking. His "yes" and "no" are just mumbled or head movement....

This was the first week that my guy has been very, very quiet. He says he just d...

•8 years ago

Little munchkin, 6 months old!

Thought you all may like to see how much he's grown! xx

Thought you all may like to see how much he's grown! xx

•8 years ago

Dental health

Hi everyone was wondering if anyone has any tips concerning keeping my husband's(w/cbd) teeth in better condition. Unfortunatley I've dropped the ball on this...

Hi everyone was wondering if anyone has any tips concerning keeping my husband's...

•8 years ago

Keep from getting Aspiration Pneumonia

My guy is having trouble clearing his throat. It is like he does not have enough breath or energy to clear it out. How do I know if he is having aspiration...

My guy is having trouble clearing his throat. It is like he does not have enough...

•8 years ago

Appropriate flooring

Our living room needs redecorating and carpet needs replaced and I am trying to plan ahead for when a wheelchair is required. Do wheelchairs move easily on...

Our living room needs redecorating and carpet needs replaced and I am trying to ...

•8 years ago

CB..What?

Got Mum up Friday morning for her hair wash ready for the hairdresser's visit in the afternoon. I took her through to the bathroom on the commode as per usual...

Got Mum up Friday morning for her hair wash ready for the hairdresser's visit in...

•8 years ago

Hummingbirds

Hi there, this isn't nessecarily PSP sufferer based My grandad recently died after suffering with PSP and when I have looked around to find a special gift for...

Hi there, this isn't nessecarily PSP sufferer based My grandad recently died aft...

•8 years ago

confused

Hi I saw a video of a doctor( who is trying to find a cure for PSP), in America being interviewed ,and she explained that the protein Tau destroyed random...

Hi I saw a video of a doctor( who is trying to find a cure for PSP), in Amer...

•8 years ago

confused

Hi Just read some posts today about speech and other disabilities have improved, like speech returning, I thought that once the part of the brain had been...

Hi Just read some posts today about speech and other disabilities have improved...

•8 years ago

Beginning of the end?

Oh Everyone. my husband is starting to deteriorate. He is eating less and sleeping more. I am desperately trying to get him more engaged in the world to no...

Oh Everyone. my husband is starting to deteriorate. He is eating less and sleepi...

•8 years ago

S is having a good spell. H E L P!!!

Hi, this is one of those good posts! S, for some reason, is in a really good place. Speech is great, ( for PSP) spoke more words in the last few days, than...

Hi, this is one of those good posts! S, for some reason, is in a really good pl...

•8 years ago

CBD - How far we have come in 6 weeks!

Each day has been a blurr, especially more recently! My man was hospitalized on May 2,walking with difficulty with a walker, continent, in control of most of...

Each day has been a blurr, especially more recently! My man was hospitalized on ...

•8 years ago

Younger psp sufferers !!

My husband is 55 and has been suffering from psp for almost 3 years - he is now in the advanced stages. Because he is younger and we still have children at...

My husband is 55 and has been suffering from psp for almost 3 years - he is now ...

•8 years ago

Debbieann, you gave me the idea.

My brother and his wife are staying with us at the moment and live in the midlands miles from the see. It was a lovely day yesterday so took a trip to...

My brother and his wife are staying with us at the moment and live in the midlan...

•8 years ago

Nothing to do with PSP

Hey all, sorry if this is not an appropriate forum for this subject, but I'm reaching out to every contact I have. My sweetheart's beloved sister-in-law,...

Hey all, sorry if this is not an appropriate forum for this subject, but I'm rea...

•8 years ago

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