This was the first week that my guy has been very, very quiet. He says he just doesn't feel like talking. His "yes" and "no" are just mumbled or head movement. He was still interested in two outings this weekend, but seemed so distant. It gets lonely. Bummer! Makes me sad--I'm losing my guy.
Nikkie
Me, too. i have told him so, trying to encourage him to speak, but he can't, I guess. I miss him sometimes so terribly.
easterncedar
It's awful. I try and encourage him to speak also, but he just has no interest. It hurts my feelings, but I can't take it personal because I know it's this awful disease taking him away from me one piece at a time. I just need to entertain myself at home so I don't let this get the best of me too.
Nikkie
Nikkie yes it is horrible when they don't talk, makes you feel so lonely, George talks very quietly when he does, but normally just looks at me, sending you a big hug Yvonne xxxxxx
Thanks Yvonne.
His eyes even look sad and I can't help him and can't fix it. Drives me nuts.
XOXOX
Nikkie
hi eastern cedar, like I try to say, love you, alice
There are lots of "worst parts" to PSP, but I really do think the loss of communication is the biggest. S hasn't really spoken for a couple of years now. Yes, it is bloody lonely!!!n this last week, he has suddenly perked up and has managed a few words. I have been walking around on cloud nine. Suddenly I'm not so tried, I can cope with a lot of the dire problems in my stride. All because he spoke my name. Even the dog is in shock, when S called him, he has never heard him speak before, he is a year old!
S often use to say, he didn't feel like talking, or he had nothing to say. This from a man that could talk the legs off every donkey going!!!
I am away now, S is in respite. Just hope this spell of being able to talk, lasts when we get back home.
Lots of love
Heady
Enjoy yourself Heady, have a good rest. I'm still waiting for my respite time, by the time I get it (or even if) I'll probably be on my knees!
Love and hugs....Pat xx
Have a lovely time Heady and I too hope S is still talking when you return. Nanny857 xx
It's a lonely road isn't it, you feel very alone most of the time!
Sending you a big hug....xx
It is very sad. he is still in there though. C hasn't said a word for ages but yesterday as I was chatting away to him I asked him if he was chatting to me inside and his thumb went up. I do this regularly as one day when he could talk, I asked him why he never answered me and he said he was answering inside. I know he is not the same as when I married him but he is the same man. The poor chap has to listen to me rabbiting on and must be so annoyed he can't tell me to stop talking.
Sending you a big hug.
X
Hi Nikkie, sad when they stop talking my brother does that he try's to answer me at times and will tell me sorry I can't talk, breaks my heart as before the PSP he talked so much that literary you could not get a word in at all so. It's such a horrible thing, I live along so I am kind of used to quiet, but I feel bad for my sister en law as she feels alone as my brother just does not talk, Nettie
I also find the loss of communication hardest - as if he's gone. Yesterday I asked if he wanted to talk. Long silence and then he said "no". I felt hurt but he wanted to be with me and likes to hear me talk. I think he just can't collect his thoughts.
Jean
It does break your heart and we can't take it personal because it is the darn illness and not them. Last week we were having a conversation and he said, "I really don't care", but it was that he really did not care to respond because he had no interest in that subject. Does that make sense? It was not meant to be hurtful.
I'll ask him, "What are you thinking about this very moment?" and he will think about it and say, "nothing, nothing at all." Ugghhhh!
XO
Nikkie
Going through exactly the same thing, makes me feel so lonely. I spend too much time gazing out of the window thinking about how it used to be. Xx
Oh Katiebow, I know just what you mean. I was lying in bed this morning trying to work out when B. was in his last panto with me. I don't know how much of the man I married is left. I love him dearly, but he is now doing some very odd things, trying to get out of the car unaided, when he can hardly stand,he did this yesterday, when I was in the shop, getting undressed thinking it is bedtime when we haven't even had tea, asking," when we are going home?", when we are at home, saying I have already given him his tablets and he doesn't want more, when I haven't. What next? I just try to keep busy as I think I would cry for the rest of my life. Thank God for this site, I don't feel so alone. Sending a big hug.X
My husband too, asked when can we go home, when we are already there. Sometimes he only remembers the house we used to live in. Says our house now is all wrong. Things are in the wrong places. (he built both of them!) One night we were in bed and ask me if we could go home several times. I finally said no, we were staying here tonight. He then said I hope you didn't pay too much for the room, it's not very good!! In the morning, thankfully, "normal" comes back, but you never know what a new day will bring. B still talks most of the time, has trouble a lot forming words, and sometimes just sits. Not talking at all would be very lonely. Sorry you're going through this.
LynnO
Gosh, everyday is so different. Hard to plan because you never know what kind of day it will be.
Hang in there LynnO.
Nikkie
Yes, yes, yes Robbo1. That is some of the same stuff happening here. My guy has mentioned in the last week that he feels like he is in a dream. Everything is a dream. He says it doesn't seem real. As for the strange stuff--very odd stuff happening. He would have never done some of the things he is doing now with PSP.
Hang in there.
OX
Nikkie
I am sorry to read this. The physical problems are great but if there is some communication at least we know we are doing the right thing. Bugs has gone back into the "muttling" phase - my description of mumbling and muttering combined. At least it raises a smile when I tell her. A while ago, if Bugs said she was going to give a friend a quick ring, I knew I could go out and mow the lawns front and back. Ringing someone for a chat usually meant I could go to the pictures and have a meal afterwards. Now it is hardly a couple of dozen words a day. At least you can talk with us.
Thank you for your support. Yesterday, B answered me quite clearly and I told him that he had. He said that he had worked it out in his head first. It must be so terribly hard for them......it doesn't bear thinking about. x
yes. If lonely for us on the outside, how grievous for them on the inside. It doesn't bear thinking about, except it makes me hug more and tighter!
I can't imagine the thoughts that run through their minds asking themselves, how did all of this happen. If we think it, I can only imagine what my guy thinks.
OMG scopolamine 1.5 mg comes with many side effects
Does anyone's loved one make unreasonable financial requests?
What an awful year it has been so far.
