Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for June 2016

Today is the day!

Today I get to take J to a nursing home for 2 weeks respite, Its been a long time coming but I do sooo need it. I have bought him some nice stuff to take and...

Today I get to take J to a nursing home for 2 weeks respite, Its been a long tim...

•8 years ago

Pip assesmemt

I had my pip assesmemt today having a bad day asseser cut the assesmemt short as she could see i was in distress

I had my pip assesmemt today having a bad day asseser cut the assesmemt short as...

•8 years ago

Eyedrops - prescriptions

I am feeling a bit embarrassed about the last post. I thought the drops were prescription items as: 1. The hospital consultant prescribed them and wrote to the...

I am feeling a bit embarrassed about the last post. I thought the drops were pre...

•8 years ago

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Hello From Across The Pond, Definitive DX Help

Hello, I'm new here and actually am from across the pond. Briefly, my husband is 48 years old and has been experiencing tremor, gait, depression, dementia and...

Hello, I'm new here and actually am from across the pond. Briefly, my husband is...

•8 years ago

My pride...

When I first posted I referred to certain elements. Just a few key words: military, pride and weakness.... Well I did try and make some adjustments and tried...

When I first posted I referred to certain elements. Just a few key words: milita...

•8 years ago

Riggetness

Had a rough day with my brother his one leg has been rig get for a long time now but now it is in his other leg he could Hardley move finally got him up and he...

Had a rough day with my brother his one leg has been rig get for a long time now...

•8 years ago

Wheelchairs

Has anyone got/tried a Rascal We Go 250? Many thanks any advice appreciated Love Debbie xx

Has anyone got/tried a Rascal We Go 250? Many thanks any advice appreciated Lo...

•8 years ago

35 Years of Bliss ... with a few bumps in the road with PSP

Today, June 6th, Kim and I will be celebrating our 35th wedding anniversary. It seems like only yesterday when I saw her walking down that church isle in...

Today, June 6th, Kim and I will be celebrating our 35th wedding anniversary. I...

•8 years ago

George's 70th birthday party

We had a lovely day, George was on form, after a long nap, we had 50 people over to the party in the garden, we had a hog roast, with our son in law carving it...

We had a lovely day, George was on form, after a long nap, we had 50 people over...

Yvonneandgeorge

•8 years ago

Mouse substitutes and mobile phones

Two finds which might just be worth mentioning. Mobile phones: Liz was struggling with a smart phone so it was time to get something easy....

Two finds which might just be worth mentioning. Mobile phones: Liz was strugglin...

•8 years ago

Role Reversal....

When I first left home, my Mum sent me the song "Ain't no mountain high enough" - the words need no explanation and true to her word, she has ALWAYS been there...

When I first left home, my Mum sent me the song "Ain't no mountain high enough" ...

•8 years ago

The Universe Versus Alex Woods.

I have been given a book (just started it) its supposed to be about a boy who befriends a man with PSP and he asks the boy to take him to Zurich when the time...

I have been given a book (just started it) its supposed to be about a boy who be...

•8 years ago

The knowledge

We've just had a nice evening at my daughters, for her mother in laws birthday, involved alcohol so a cab home, as my daughter helped us to cab she told driver...

We've just had a nice evening at my daughters, for her mother in laws birthday, ...

•8 years ago

Question?

Hi everyone that has got a specially adapted car, I pick up mine on Tuesday! A Peugeot Partner Teepee. Box on wheels, in other words!!! Not very glamourise,...

Hi everyone that has got a specially adapted car, I pick up mine on Tuesday! A ...

•8 years ago

Another question about antidepressants

Maxwell123 is taking something called fluoxetine, and would like to know if anyone else has experience with this. (I'm forwarding her question for her,...

Maxwell123 is taking something called fluoxetine, and would like to know if anyo...

•8 years ago

A few more grey hairs!

I had to call the doctor to see Colin yesterday. I've mentioned before that periodically he has periods when his temperature spikes, his breathing is rapid and...

I had to call the doctor to see Colin yesterday. I've mentioned before that peri...

•8 years ago

This may sound silly but....

Muhammed Ali's death has brought back so many memories of my dad's passing away as both had very similar illnesses. As everyone's pain in this moment is...

Muhammed Ali's death has brought back so many memories of my dad's passing away ...

•8 years ago

Eye advice for PSP patients

My guy has been looking up at the ceiling for the past 2-3 weeks. He was diagnosed in 2013. Does it normally come later in the sickness, and what can I do to...

My guy has been looking up at the ceiling for the past 2-3 weeks. He was diagnos...

•8 years ago

Thinking of you mum always

2 years today we lost you mum to this awful disease psp , the ache I feel I know will never go away love and miss you everysingle day mum xxxxxx

2 years today we lost you mum to this awful disease psp , the ache I feel I know...

•8 years ago

CBD - a roller coaster ride today!

My man seemed quite bright todsy, not quite as up in the clouds as past few days, and speaking more clearly and holding cup and drinking well. His lovely chair...

My man seemed quite bright todsy, not quite as up in the clouds as past few days...

•8 years ago

Help need advice

Mums getting worse needing constant care, dad Is her main carer I do as much as I can I work full time and go to mums 3 nights a week to give dad a break. Dads...

Mums getting worse needing constant care, dad Is her main carer I do as much as ...

•8 years ago

moving in bed

hi me again! thanks for the useful replies re temperature change reassured! i am doing most of the care for rog, my choice, with plenty of support, has anyone...

hi me again! thanks for the useful replies re temperature change reassured! i am...

•8 years ago

New to PSP

This is very new to myself and poor Mum who has only been diagnosed within last 6 weeks. Mum is 84 and always been in good health until18 months ago. Now...

This is very new to myself and poor Mum who has only been diagnosed within last ...

•8 years ago

Eye Drops - G Xailin Fresh

For a while Bugs has been having trouble wearing contact lenses - she found it very hard to remove them. I think the time has come to revert to glasses but my...

For a while Bugs has been having trouble wearing contact lenses - she found it v...

•8 years ago

Convenes

Having found that my husband gets on well with the convene after using a weeks supply of samples the incontinence nurse faxed through to GP a request for...

Having found that my husband gets on well with the convene after using a weeks s...

•8 years ago

Lumbar puncture analysis as a diagnostic tool?

Has anyone been recommended to do a lumbar puncture and use advanced analysis of the fluid to improve/modify/change the diagnostic? It seems that neurologists...

Has anyone been recommended to do a lumbar puncture and use advanced analysis of...

•8 years ago

rise in temperature

hi has anyone experienced in our peeps a sudden rise in body temperature? it then appears to affect their movement understanding and speech. rog gets this most...

hi has anyone experienced in our peeps a sudden rise in body temperature? it the...

•8 years ago

CBD - the end? Not just yet!

My man rallied overnight with masses of antibiotics in the drip. He apparently quite happy to play with call bell in morning. He did so a few days ago too, and...

My man rallied overnight with masses of antibiotics in the drip. He apparently q...

•8 years ago

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