This is my first post, not just on this forum, but on any forum, ever.. I've been following the PSP community posts for ages because I'm convinced that my husband has PSP, although the neurologists won't confirm it. They continue to say that it's "probable Idiopathic Parkinsons", but that it "might" be PSP. From the research that I've done, my husband has such typical PSP symptoms - and more almost every day. Since he first got ill two years ago, his balance has become terrible (falls several times a day, mainly backwards), his mental ability is about a quarter of what it was, his personality has totally changed (although in his case for the better as he used to be really short-tempered). There are lots of other symptoms too, but his eye movement seems pretty good, which is what is preventing the neurologist from diagosing PSP.
Do the eye movment problems often happen later in the disease, or is it possible to have PSP without these problems?