Felt very sad at the weekend as my nephew was married at the weekend and Ben didn't want to attend it was 200 miles away and meant an overnight stay, wedding reception was in a converted barn and looked great fun. I asked my sisters to take photos as the day progressed to keep me in the picture. It didn't think it was going to upset me as much as it did but I was so upset and Ben just didn't respond to me when I was in tears. The only comment he said was "you don't want to look after me any more do you? " I felt so alone, in the past he would have given me a cuddle and talked about why I was upset. I hate what this disease does to your lives. Went for my weekly councelling session at the hospice whilst Ben was in the Day Centre there, was good to pour out my feelings.
Well that's enough of me feeling sorry for myself, off to Bristol tomorrow to see our grandchildren. Not sure how we are going to manage sleeping on the sofa bed, getting Ben to the loo but will manage somehow as so desperate to give those little boys a big hug.