Hello pippin123.
This my first post, so very scary, my man was previously diagnosed with MSA, then 6 years down the road he was re assessed and told it was CBD, we went to see professor Leigh, who was so kind and sympathetic, we have had 3 hard years where I have been using a standing hoist for movement, but have just relegated to a ceiling hoist, I can only say my biggest support is the OT department who are fantastic, my man has a severe drop head and slips to his left whilst sitting, we are now looking to get a specialised riser/recliner chair, which will make him more comfortable, also my continence nurse is amazing, we first had the Afex system which is an external catheter with normal boxers and a convene, which attaches to a bag, this was great for the first few years, as it worked day and night, but as the illness progressed we had more leakages and moved onto pads, these come in different absorbancies, so we can put one on at night and not have to replace bedding which is a godsend, I use washable pads on the bed, called Kylies they are blue quilted, and easy to wash and dry.
We also have a bed which has remote controls and an air mattress to prevent bed sores to wit pro shield is the new sudacreme!!
Hope this helps someone xx chin up 👍
CBD
CBD
CBD - Is this the end?
CBD oil and more frustration 
CBD & Turmeric- food suppliments
