Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for January 2016

Sponsored silence

Just wanted to share how wonderful my 10 year old daughter is, she's decided to do a sponsored silence next Monday and all money she raises is to go to the PSP...

Just wanted to share how wonderful my 10 year old daughter is, she's decided to ...

•8 years ago

My wonderful dad xx

Hi my names Claire and I'm new to all this. I got such great comfort from reading many of your posts. My dad has been suffering for a few years with lots of...

Hi my names Claire and I'm new to all this. I got such great comfort from readin...

•8 years ago

The PEG was fitted today.

When Colin could communicate properly he signed a statement saying he wanted a PEG fitted when it was absolutely necessary. We had quite a discussion and I...

When Colin could communicate properly he signed a statement saying he wanted a P...

•8 years ago

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DLA TO PIP

I've just received notice that I have to put in an application to transfer my DLA to the new PIP. Nothing is guaranteed said the guy from DWP so it's like...

I've just received notice that I have to put in an application to transfer my DL...

•8 years ago

Saw this and thought how true

Just an echo of my moto

Just an echo of my moto

•8 years ago

spooky

For the last few months my husband has fought off several infections he has been sleeping for most of the day and was hardly talking at all, he has been bed...

For the last few months my husband has fought off several infections he has been...

•8 years ago

hi all i am back online now with muy keybd fixed,and= I have a question: does anyone know about terrible flat;ulance ; fartiign ?

I 0 EBEEN HAING TERRIB;E FARTO=ING / TIURMPIGN WHAT VEER U WAMT OT CA;LL IT LAST 5 WEEKS =*)(0DRY AND WET FATTS TOO_+) IGHTIEM AND DAYTIME AND IT NANOT BE...

I 0 EBEEN HAING TERRIB;E FARTO=ING / TIURMPIGN WHAT VEER U WAMT OT CA;LL IT LAST...

•8 years ago

UCSF final part of study

Hi everyone hope all is well sorry been crazy for me try to pop in when I get 5 min. Just an update on a few things. We are soposed to go back to UCSF Feb....

Hi everyone hope all is well sorry been crazy for me try to pop in when I get 5...

•8 years ago

Yippie

It's funny but social services have been round twice trying to sort out changing our bathroom and they still couldn't get my point of view. In the end a called...

It's funny but social services have been round twice trying to sort out changing...

•8 years ago

Fall

Well we took a road trip to central Fla. to pick up a lift chair for my husband. We stopped at a rest area to go to the bathroom. I called into the men's...

Well we took a road trip to central Fla. to pick up a lift chair for my husband....

•8 years ago

Hooray! The hoist has finally arrived.

What a relief. It's here and I've had my training session. So we didn't have to pull Colin about too much, I managed to get him out of bed and onto his chair...

What a relief. It's here and I've had my training session. So we didn't have t...

•8 years ago

REM sleep disorder may lead to untimely death of brain cells.

Thought I'd share this, sounds about right to me. My dad has PSP and has always had trouble sleeping....

Thought I'd share this, sounds about right to me. My dad has PSP and has always ...

•8 years ago

Coconut oil

I was doing some research and found this http://www.naturalnews.com/042624_coconut_oil_Parkinsons_patient_quality_of_life.html Which led me to this...

I was doing some research and found this http://www.naturalnews.com/042624_cocon...

•8 years ago

New Here

Hello all, I am new here, although my partner was diagnosed with PSP about 15 months ago. I think he has had it for 3 or 4 years in truth, like many he was...

Hello all, I am new here, although my partner was diagnosed with PSP about 15 mo...

•8 years ago

CHANGING DIAGNOSIS

Hi all, Took hubby to the neuro yesterday for her to test whether or not the sinemet is helping or not. She gave him the lower dose of what he is on and then...

Hi all, Took hubby to the neuro yesterday for her to test whether or not the sin...

•8 years ago

Commode

Can any one advise type of commode they have found very good, my husband just about manages to get out of bed to use his but at least 3 times a week stumbles ,...

Can any one advise type of commode they have found very good, my husband just ab...

•8 years ago

POLL: Possible First Warning Signs?

Daddy has had symptoms of PSP for as long as 9 or 10 years, he's now age 81, but he wasn't correctly dx until last year, 2015. I often look back and try to...

Daddy has had symptoms of PSP for as long as 9 or 10 years, he's now age 81, but...

•8 years ago

Suspected diagnosis

I was given a suspected diagnoses of cbd. I have read about it and know how it affected my grandmother, but that is not much to give me any idea how it will be...

I was given a suspected diagnoses of cbd. I have read about it and know how it a...

•8 years ago

Question?

My mom was recently diagnosed with PSP and we were treating her for Parkinsons, but now we know for sure what it is. Did anyone find that speech therapy...

My mom was recently diagnosed with PSP and we were treating her for Parkinsons, ...

•8 years ago

Full on, crazy week!

The saga of the hoist continues. Legs now very weak, a full hoist was ordered for delivery on Christmas Eve. Did it arrive, of course not. Santa doesn't...

The saga of the hoist continues. Legs now very weak, a full hoist was ordered f...

•8 years ago

A New Year!

It almost doesn't feel right, writing "happy new year" so I won't.....all I'm going to say is that my best wishes and love go out to you and yours for the year...

It almost doesn't feel right, writing "happy new year" so I won't.....all I'm go...

•8 years ago

Is there a common factor?

My daughter and I have read some articles suggesting that toxic chemicals can be a contributing factor for psp. My husband was a petroleum engineer all his...

My daughter and I have read some articles suggesting that toxic chemicals can be...

•8 years ago

Back home 👏🏻 / tracheostomy

After a 33 days of IC we are going back to our home. She is so strong in fighting with this desease. Unfortunately we have a tracheostomy now and a quite a...

After a 33 days of IC we are going back to our home. She is so strong in fightin...

•8 years ago

Fulvic Acid Supplement

I thought I would share this as not many ppl seem to know about this supplement. But be careful, it says when mixed with chlorinated water it can become...

I thought I would share this as not many ppl seem to know about this supplement....

•8 years ago

Wonders of respite

I just read Yvonne's post about exhaustion and here am I feeling refreshed after ten hours' sleep. I am bundled up in sweaters and heavy coat but sitting in...

I just read Yvonne's post about exhaustion and here am I feeling refreshed after...

•8 years ago

New year

Well if this is what to come, I don't want to start the new year, George has called me at least 80 times since 9 o'clock this morning, asking to either go to...

Well if this is what to come, I don't want to start the new year, George has cal...

Yvonneandgeorge

•8 years ago

Welcome 2016

Hope this first day of the new year is already ushering in joyful, calm moments, lots of loving interactions with loved ones and appreciation for the PSP...

Hope this first day of the new year is already ushering in joyful, calm moments,...

•8 years ago

Lift supplies

A RN in my area put this video on Facebook. It is lift ideas and supplies. I googled most of them, and they are reasonable in price. Copy and past in your...

A RN in my area put this video on Facebook. It is lift ideas and supplies. I goo...

•8 years ago

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Celebrations

After going out to celebrate the New Year in and neither of us having a drop to drink bar cups of tea we arrived home in the early hours . My husband is...

After going out to celebrate the New Year in and neither of us having a drop to ...

•8 years ago

Happy New Year ALL

I have been reading this blog for about a year now, since my husband mark who is 59 was diagnosed with psp. Does any one know of website or any ideas for...

I have been reading this blog for about a year now, since my husband mark who is...

•8 years ago

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