spooky: For the last few months my husband... - PSP Association

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spooky

nellienoonoo profile image
22 Replies

For the last few months my husband has fought off several infections he has been sleeping for most of the day and was hardly talking at all, he has been bed bound for several months due to contractures in his legs and was hardly eating or drinking. But 2 days ago it was like someone had flicked a switch he is alert eating and drinking well and talking loads and no sign of slurring and now and again his sense of humour shines through. He still cant remember how to use the phone but he got me to ring up several of his friends and was chatting to them, the only downfall has been he cant sleep at night even if he has taken a sleeping tablet but I am so pleased to see part of his old self back and long may it last. Has anyone else had this happen and how long did it last .

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nellienoonoo profile image
nellienoonoo
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22 Replies
NannaB profile image
NannaB

Wow! That's amazing. Colin will occasionally say a few more distinguishable words but nothing like your husband. He certainly couldn't chat to anyone. It's a good opportunity to ask him how he feels when he isn't responsive and what else could be done to make him more comfortable, if anything. I always wonder what Colin is thinking.

I hope it lasts a long time And if you can think of any reason it may have happened, please let us know.

X

jillannf6 profile image
jillannf6 in reply to NannaB

HI NANNAB

AS ALWAUS YR POST IS A SYMPATHETIC REPLY TO WHATEVER THE PERSPN HAS WRITTEN

;LOL JILL

jillannf6 profile image
jillannf6 in reply to jillannf6

[PLZ EXCISE THE TYPOS

Doglinton profile image
Doglinton in reply to jillannf6

I agree with nanna B . I really feel happy that you join in as Chris is not interested.

I also taught young children so am comfortable with free spelling !

love, Jean x

jillannf6 profile image
jillannf6 in reply to jillannf6

EXC US E NOT EXCISE

LOL JILL

DenB profile image
DenB in reply to jillannf6

I can always understand your posts Jill. I think you're pretty amazing actually!

D X

in reply to DenB

I agree. I think Jill is pretty amazing too! I am in awe. Your partner Jill, is a lucky fellow to have found you. Lots of love to you both xx

Nader

jillannf6 profile image
jillannf6 in reply to DenB

TYA OR THAT DEN B

LOL JILL

NannaB profile image
NannaB in reply to jillannf6

I never have a problem with your typing Jill. Two dyslexic sons and 20 years of reading things written by youngsters of various learning abilities gave me plenty of practice of reading alternative spellings. I'd often sit round a table with a small group so I'm quite good at reading upside down as well....not that I have to do that now.

You amaze me how well you communicate. Colin wasn't interested in using a keyboard to type. Even when he was able, he didn't want to. Long may you continue.

X

abirke profile image
abirke

Wow, Bruce may have slowing to the effects but no such reversals...at least not like your husband....ooohhh hold on to it and be happy......I am so glad for you.....maybe you could ask him a few pertinant questions, like , does he feel different now than then? Do you wish I could do something when you cannot communicate....

Don't ask too many questions mind you lest you swing him into a funk about his state...but I don't know like where can I place the tv so you can see it , those sort of things.....

Anyway I am very happy for you both. I hope it continues,,

AVB

This is one for that questionnaire database thing...others might have experienced this because who knows; the room temp was 78*F (21*C) for 3 months....or a type of vitamin was administered etc.......

Heady profile image
Heady

Oh, that you could bottle what ever has done this! I could use some myself, never mind S!!! All I can say is,ENJOY! ENJOY! ENJOY! The not sleeping sounds rough, if the pills don't work on him, take them your self. You will need to be well rested to cope with the "new" husband!!!!

Lots of love

Heady

Doglinton profile image
Doglinton

Great !! Enjoy it while it lasts. Hopefully for quite a while.

Chris isn't at that stage yet but I certainly notice a big variation in his ability to communicate but don't know the code to unlock it !

love, Jean x

Amilazy profile image
Amilazy

I hope the remission window does not close too soon, ask questions about what he wants, likes and most importantly not like about his care. Take it as a blessing and enjoy, if he cannot sleep do not worry he probably does not need it.

Best wishes for a long remission Tim

abirke profile image
abirke in reply to Amilazy

You said it Tim! window of opportunity to know what your mate really wants and needs are few and far between....use them!

AVB

jillannf6 profile image
jillannf6 in reply to abirke

i agree owtj what AVB hAS SAID

LOL JILL

sammy90210 profile image
sammy90210

Sorry if it sounds bad (or worse) but the only instance where I've heard this happen is from a caregiver in a YouTube video - she said that it indicates the person is in the last stages of life.. Could be a few days or weeks or months but this sudden clarity of mind and speech indicates that - it's only anecdotal and I may be wrong... It sounds wonderful though, I hope he stays like this for a long time and enjoys his time of coherence

jillannf6 profile image
jillannf6 in reply to sammy90210

I DONT LIEK UR THOUGHTS SAMMY BTY U MAY BE RIGHHT I HOPE NOT

LOL JILL

XXXXX

Yes, it's amazing isn't it.. my father's speech deteriorated over several months and we resorted to using an ABC board in September (which was so frustrating for all involved as his hand movements were so slow) but... just after Christmas we had to stop his oxybutinin patches as he was allergic to the glue and the surgery refused liquid as too expensive (not able to swallow pills for obvious reasons ) Anyway, either a Christmas miracle or a result of not having the medicine his speech returned!!not perfect but sentences and clearer words and a rise in the volume of speech as well. He is however a wee bit more demanding than he used to be so more exhausting for us so a two edge sword it would seem but worth it as now his humour shines through along with a glimpse of the father I was losing.... I like to think it a Christmas miracle and nothing to do with the medicine😀

Katiebow profile image
Katiebow

Isn't it bFfling hat these things seem to happen for no reason, long may it last. Xx

jillannf6 profile image
jillannf6 in reply to Katiebow

IT IS KATIEBOW

BUT LOGN MAY IT LAST1

lol jill

xxxxxx

easterncedar profile image
easterncedar

How are things going now, Nellie? Is your husband still alert? Has he been able to sleep at all? It's such a strange phenomenon, and I have been thinking about you both a great deal since this first post. Best, Ec

aliciamq profile image
aliciamq

My husbands speech is pretty good - it has been worse and we have that that weird experience of normal talking a few times - which freaks me out- in a good way!!!!

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