Daddy has had symptoms of PSP for as long as 9 or 10 years, he's now age 81, but he wasn't correctly dx until last year, 2015. I often look back and try to discern what may have been early symptoms. A possible first was several years after he retired at age 65, when I'd come to visit he'd greet me and still be having a conversation with me but all while he continued to play his card game online, which he'd do for hours each day while his wife was working. I thought it a little out of character that he didn't show more interest in me, and a little rude but as the obedient daughter, refrained for commenting about it. In retrospect, knowing PSP can cause lack of impulse control and can cause the person to be fixated on things, makes me wonder if that was our first clue. Then about 8 years ago, he was helping my friend build a greenhouse, he was in the back of a slow moving pickup truck alone and fell out head over heels. He was never a kuitz, so I know this was early PSP symptom.
Since that time, he's now only able to manage a few steps per day, with help, to transfer from hospital bed, to wheelchair, to lifting recliner, and he still stands to urinate during the day but barely, and no longer at night as he was having too many hard falls, falling like a tree, with a reaction time too slow to ever break his falls. Mentally the worse he's been was due to having a UTI, and I'd have never figured out (I'm one of his 2 fulltime caretakers,) that the UTI was causing dementia especially at times he'd wake during the night and be very unreasonable, IF NOT FOR THIS VERY INFORMATIVE FORUM!!!!! Thankfully ever since he's been recovered from the UTI, he's been generally reasonable even when he wakes during the night.
I wonder too, about the excessive mucus or phelgm which was present all his life, as it has been all my life, although I go to great lengths to HIDE the problem. Daddy smoked 4 packs of cigarettes a day for years, but even after he quit, decades ago, he still had to constantly clear his throat. I smoked 1 pack a day for over 30 years and have been quit for 6 years but still have more mucus than is normal. I always figured it was because I was like my dad but NOW I wonder, am I like my dad in that I could end up with PSP too if I'm fortunate enough to not die of something else first, (being I'm a cancer survivor). SO, DID ANYONE ELSE REMEMBER THEIR PSP SUFFERER HAVING EXCESS MUCUS LONG BEFORE OTHER SYMPTOMS WERE PRESENT?????????? And / or, what WERE probably the first warning signs, now that you see it in RETROSPECT?????? THanks dear folks, and may you all be blessed throughout this new year. Please know you're all in my prayers.