I am looking for other PSP patients that were diagnosed after a stroke.
My father in law- 72 years old- was 100% independent, did everything on his own. Baby sat my daughter after school, drank beer, drove around, managed all bill, forgot nothing. Not heath concerns except for a weak heart.
In February of this year he suffered an extremely rare stroke of this Thalmus .. he was in ICU and non responsive for about 8 days, Doctors said that people with this kind of stroke just dot wake up.
Well he beat the odds and woke up. After staying in the hospital another month his condition worsened. We wasn't able to eat, not walk- gait was off, incontinent, didn't stay awake more than a dew hours at a time, vision was off- couldn't look down. No one knew what was going on- they diagnosed him with Dementia and send him to rehab for his stroke.
Now at a new hospital they did another CT scan because he was non responding and just wanting to sleep. That is when they saw very minimal stroke damaged and was diagnosed with the PSP.
From there is has been a crazy roller coaster. He is not able to walk or stand without assistance, he cant use a walker, cant see down, has a lot of trouble eating due to vision problem, tired all the time, anger outburst. My self (28) and his son (34) are his caretakers, he lives in our home now. I take him to adult day care. We have good days but we sure have a lot of bad ones. He has to have 24/7 care so when we are not able to or even need a break we hire a caretaker.
Has anyone else experienced sudden onset like this?