Please can any one help mother has advanced PSP and in a nursing home. She is completely peg fed and allowed nothing by mouth at all she is able to communicate with me by moving her leg and can say one word which is MORE and this is in response to the one ml of water I carefully and slowly drip into her mouth , I have been doing this on the sly for a year now as the home have forbidden me to do it! I am a trained nurse , I guess they are scared she will aspirate ! She is obviously desperate for ORAL fluid she gets water via peg . She is in bed can do nothing for herself not even press call bell ! If all she wants and is asking for is a drop of water surely she should have it are they being unreasonable or is it me ?
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