Has anyone heard of or know anything about... - PSP Association

PSP Association

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Has anyone heard of or know anything about the drug Quetiapine? The Falls clinic nurse has suggested that my GP prescribe it for my

dorothy-thompson profile image
14 Replies

husband's aggressive behavior. I loooked it up on the net and see it is prescribed for Alkzeimer's amongst other things.

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dorothy-thompson
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14 Replies
jillannf6 profile image
jillannf6

hi doROWTHY

I HAVE BEEN ON QUETIAPINE IN THE PAST - SMALL DOSE TO EHLP EM SLEEP AT NIGHT

)I NOW TRAKE TRAZADONE INSTEAD)

LOL jiLL

:-)

dorothy-thompson profile image
dorothy-thompson

Hi Jillanf6

Thanks for this. Do you feel 'better' on the Trazadone?

lol dorothy

jillannf6 profile image
jillannf6

NO TREALLY SURE DOROTHY AS AT THE TIME I WAS ON A DIFFERENT ANTI-DEPRESSANT AND THE QUETIAPNE WAS STOPPED WHEN I CHANGED ANTI DEPS

I HAV E BEEN CRYIGN SO MCUH IIN TEH LAST WEEKS - I TIS THE PSP BTU V DIFFICULT TO LIVE WITH FOR ME AND MY FAMILY1

(FRIENDS ARE MORE UNDERSTANDIGN)

HAVE YOU GOT ANY NEARER GETTIGN ANY CARE IN FOR YOUR HUSBAND DOROTHY?

LOL jiLL:-)

Kathy profile image
Kathy in reply tojillannf6

Dear Jill,

So sorry to hear you are struggling at the moment :-( why did they change your antidepressants?

I suggest you go back to your GP and see what other options there are.

Take Care my dear! Chin up - we're here for you and understand

BIG HUG

love

Kathy xox

dorothy-thompson profile image
dorothy-thompson

Hi jillanf6

I am so sorry, I cannot begin to imagine what you are going through, life can be so hard and unfair sometimes.

I am getting care for my husband thank you, its all taken such a long while and most of what happens is mainly iniated by me, the "professionals" seem so slow, makes you wonder just how much "care in the community" is actually going on. We seem to take one step forward and three steps back. Each time I think I've cracked a problem, another one comes along and we start all over again. I'm constantly being told how strong I am, yeh thats right, I've got muscles like popeye! Can't fault the carers though, they're the one bright spark in all of this.

But what about you, how do you cope and are you getting help?

lol dorothy-thompson

Kathy profile image
Kathy

Hi Dorothy,

Mum tried Quetiapine a while ago but it didn't really agree with her. The neurologist who prescribed it said to try it for a minimum of 1 month. She was on the minimum dose but she was virtually comatose for 21/24 hours so we stopped it as soon as the month was up!!

As with all things PSP it might be worth a try - different drugs affect different people in different ways!!

Kathy

dorothy-thompson profile image
dorothy-thompson

Hi Kathy

Yes, you're right, so many of these drug do make the patient virtually comatosed. I am just searching for information on one that will reduce my husband's aggressive behaviour just a little as it is so difficult to cope with.

dorothy-thompson

LALITHA profile image
LALITHA

My husband is taking quetiap[ne 25 twice a day for the past 1 year

he is less agressive now and at present he is completely bedridden he is lying in the bed for about 22 hrs a day

lalitha

Although we did not try this with mum we were given hope that a dementia drug would improve mum's alertness and cognition but it had drastic effects on her physical strength and we held on thinking we must give it a chance to work/maybe the PSP was just worsening and by the time we got it stopped mum was in collapse so PLEASE stop at the first sign of any negative change. Some changes mum suffered were irreversible and I wish we had never tried it but it's something you feel you have to do. With hindsight I can see she was as good as she could get and the doctor we saw at that time did not understand PSP at all and actually thought mum had dementia. We on the other hand knew she did not at all I would warn that really only a neurologist with experience of PSP should be totally trusted.

jillannf6 profile image
jillannf6

hi kahty

mh bP wen tv high (prior to dxs with PSP _0 and so my psychiaatrist decided it was caused by teh venlafaxine i was on and changed to others for me

i wa s also hav ing problems with high pressure in my eyes and that was another factor as i am v short sightedi am on duloxetine which suits ne and an anti-anxiety med (buspirone)which i have cut righ tdown as it mahy hav ebeen comntributing to my balance probs (but nto sure

i really need ot see my psychiatrist again as this crying is dreadful and is gettign worse

lol JIll

NannaB profile image
NannaB in reply tojillannf6

Oh Jill, I'm so sorry you are feeling so low and hope you receive the necessary help soon.

Take care.

Nanna B

summergirlx476 profile image
summergirlx476

Yes Jill, I'm so sorry to hear of your troubles. You offer so much help and compassion to everyone on here with such experience. Please take care of yourself. Hope you have some laughter in your life.

Big Hugs

Linda

summergirlx476 profile image
summergirlx476

Dear Dorthy, I do not have aggressiveness with Gerry but he did have some hurtful comments in the past. I think it was a time he was going through as he is not that person. I do find tho that he considers himself first in a lot of situations. I am expected to drop whatever I am doing to aide in his needs. Aggressiveness must be so difficult to deal with. Hang in there.

Big hugs

Linda

dorothy-thompson profile image
dorothy-thompson

Thanks summergirlx476, yes you're right it is very difficult to deal with, I've just got as very bruised hand to prove it!

My husband has always had somewhat aggressive - or some would say assertive - behaviour, especially towards me (I call it bullyinng) and now that I have to take control, he can't handle it, hence a drug - anything - to help him and me to cope.

Thank you to all for your input as well.

take care

dorothy-thompson

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