Does any one else have a shakeing rigid type of fit

[stalbans]

At times I shake vialantly and go rigid often for about 3 minuets

[Hidden]

I am not sure about your background and whether you have PSP or an associated disease or Parkinson's.

PSP does not usually cause the uncontrolled shaking (tremor) in muscles at rest that is associated with Parkinson's disease, and I'm not sure that the uncontrolled shaking in Parkinson's can be described as short term fitting.

Even dystonic tremors found in some PSP sufferers is usually in one area or one set of muscles, or on one side and not total body.

There are many other types of tremor (fits/shaking) and it would be wise to consult your GP or neurologist as soon as possible.

Sorry I cannot be of more help.

All the best.

[Hidden]

My husband has had rigors like this the doc thought it was infection but I don't think so.I am very interested that someone else has experienced this

[Hidden]

Hello again

While I suggested that uncontrolled whole body shaking tremors are unusual in PSP, I did not talk about the other term, namely rigors. We have discussed rigors earlier in this forum.

It has certainly been shown that "rigors" (associated with temperature control) are definitely seen in PSP (and similar diseases, like MSA). This results from damage to what is called the autonomic nervous system (to use the medical description..PSP, among other things, is an extrapyramidal disorder and causes dysautonomia).

(It's interesting to note that early medical researchers did not think that the autonomic system was affected in PSP, but more recent studies have shown the opposite).

Although rigors are often associated with infections (that should be investigated initially), it seems that some carers will describe rigors occurring in their loved ones without evidence of infections. Many PSP sufferers will have thermoregulatory problems, with being hot (and lots of sweating) or cold. This may well initiate rigors.

I would certainly be interested in the thoughts and experience of others.

Cheers

[laroux]

well, this is the thing they are warning my husband about. he keeps wanting to increase his Sinemet medication, and that is one of the side effects of taking too much. I'd have to look for the other name for it, but it is a common parkinson's med used in psp patients. if you are taking this, perhaps you are taking too much?? Hope you find an answer

|Joan

[Hidden]

There is a possble side effect of dyskinesia (uncontrolled involuntary movements) from dopamine drugs like Sinemet and dopamine receptor agonist drugs like Permax. Always good to check on side effects of medication taken for PSP (especially since many PSP sufferers have comorbidities and take other medications for other diseases)

Cheers

[JoJo-K]

As Strelley mentioned high temp or fevers has bought out the rigors on my mum twice in the last 3 months. Both occurred times very late at night while mum had high fever (no infection) The carers at mums residential home described mums body going almost completely rigid while shaking, this lasted up to 10 minutes then the body more relaxed and small tremors lasting a few hours afterwards.

When I asked my mum about this, thinking she must be terrified, she had no memory of it or having any pain.

Hope this helps a little.

Kind Regards

JoJo

[mummybear]

Just a quick word, hubby used to have these strange fit like episodes last year where he used to cough then have a backward fling with his head right back and the body stiff turning red, the best me and the doc could come up with was cough syncope? they went away never to be seen again, But and their is always a But now he is wheelchair bound he keeps pushing himself up from the footplates and lay's like a plank at first i thought he needed a stretch or he was uncomfortable so we got an air cushion for him, i asked him about it but he cant really remember them? i think it's the brain getting dodgy signals. well that's my twopence worth, oh and he takes no Med's.

[stalbans]

I would like to say iut was due to a drug vor to much of it but my nuro wont allow me even a sleeping pill to get a nights sleep, My body at time is in a lot of pain

[mummybear in reply to stalbans]

Hi,stalbans but i think the doctor needs extra information on this disease as everyone i talk to says their partners with PSP needed sleeping meds and pain killers. Hubby has just started on them and they were a life saver, he ran out of the pain meds and i didnt get any sleep along side him all night tossing turning and moaning. You both dont need to put up with it tell the doctor, download information from the web and if he wont play ball change doctors. My hubby was lucky enough not to feel pain until now, it is mild but sometimes the body is in pain without them knowing. good luck