PSP Association
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When It Rains It Pours

I keep looking for that black cloud that surely must be following me around. I am the sole caregiver for my husband who has PSP. I am four weeks past major abdominal surgery; my children's father is actively dying (he had his defibrillator turned off because it was shocking him continuously); my son-in-law's father is actively dying from metastatic cancer; and I just got word that my youngest son was transported to the hospital for a severe infection - certainly sepsis and perhaps a flesh-eating virus. It is very scary and I am trying to make emergency arrangements for my husband's care in a nursing home so I can go visit him. No one in any of these situations lives in the same area - stretched through both ends of Maryland, us in Virginia and one in Florida. Just adds to the dilemma facing us all.

Even with all this, I can see blessings in all our situations. And I'm sure that there are those who have worse problems than we do.

I thank God that I have a strong faith and I know he walks with us all the way.

I hope by my next entry, things will be looking up. There can certainly be some things much worse than death.


9 Replies

icaroline well mate you certainly have a lot to contend with i am very sorry for all your situations

you find yourself in mate but things will get better for you===============you quoted it never rains but it pours now i will give one back to you \\'' every cloud has silver lining 'hang in there keep your chin up and a smile on your face i try i have psp to best wishes to your husband as well mate take care peter jones queensland australia psp sufferer


Almost too much for one to bear; but you can still see the blessings. You're a remarkable woman with remarkable resolve. Will keep you close to my heart and in my prayers.



Hi Caroline,

So sorry to hear about your situation. You certainly have one very positive attitude.

Really hope there is some light on the horizon for you.

Best wishes.



We are all thinking of you, stay strong, I wish you better days very soon. xxxx


Oh dear Caroline, I thought I was having a difficult week. I pray that He will give you His special peace and keep you and the rest of your family strong.

Nanna B


Dear Caroline..I'd say you have more than a down pour. This is the thing about this site, when you think you are going through tough times someone posts something to make you look at your problems as NOT so bad after all. Stay strong and know that we are all sending you hope and healing. Hoping for the best for you and your family.

A caregiver, Linda


Oh, sweet Caroline, we just had a major blow delivered today (won't bore you with it now). And we've known for some months that my husband may have PSP (not confirmed yet), but he was falling up to 22 times a month until a couple of weeks ago, when he can no longer walk at all.

Anyway, the major crisis today sent me into a real pity party, in spite of my reliance on the Lord. Perhaps He directed me to your post, 'cause my problems do indeed pale compared to what you're currently facing.

I keep thinking of Matthew 11:28: Come to me, all who labor and are heavy laden, and I will give you rest.

Lay your burdens on Him, darlin', and many of us will be praying for your peace that passes all understanding.



Carla, thanks for your lovely words. The Lord is indeed good. I got word this morning that my son has turned the corner and though he is very sick, he will recover. My son-in-law's father died yesterday - a blessing itself since he didn't know his family. But remember, my problems don't in the least diminish yours. It sounds as if your husband has had PSP for quite a while. Bless you for caring for him.



Caroline, I know what you mean about having your faith to give you support in times of trouble. I remember when I lost my first wife to CJD (brain disease) attending a widowers group and some of the men were really struggling with the loss of their spouse. I asked the facilatator of the group how people with no strong faith to support them make it in these situations. His answer, "many don't". Hang in there and just do your best, don't second guess your choices, extend love.



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