When It Rains It Pours: I keep looking for... - PSP Association

PSP Association

9,665 members11,572 posts

When It Rains It Pours

carolinesimmons profile image
9 Replies

I keep looking for that black cloud that surely must be following me around. I am the sole caregiver for my husband who has PSP. I am four weeks past major abdominal surgery; my children's father is actively dying (he had his defibrillator turned off because it was shocking him continuously); my son-in-law's father is actively dying from metastatic cancer; and I just got word that my youngest son was transported to the hospital for a severe infection - certainly sepsis and perhaps a flesh-eating virus. It is very scary and I am trying to make emergency arrangements for my husband's care in a nursing home so I can go visit him. No one in any of these situations lives in the same area - stretched through both ends of Maryland, us in Virginia and one in Florida. Just adds to the dilemma facing us all.

Even with all this, I can see blessings in all our situations. And I'm sure that there are those who have worse problems than we do.

I thank God that I have a strong faith and I know he walks with us all the way.

I hope by my next entry, things will be looking up. There can certainly be some things much worse than death.

Caroline

Written by
carolinesimmons profile image
carolinesimmons
To view profiles and participate in discussions please or .
Read more about...
9 Replies
peterjones profile image
peterjones

icaroline well mate you certainly have a lot to contend with i am very sorry for all your situations

you find yourself in mate but things will get better for you===============you quoted it never rains but it pours now i will give one back to you \\'' every cloud has silver lining 'hang in there keep your chin up and a smile on your face i try i have psp to best wishes to your husband as well mate take care peter jones queensland australia psp sufferer

JudyJ profile image
JudyJ

Almost too much for one to bear; but you can still see the blessings. You're a remarkable woman with remarkable resolve. Will keep you close to my heart and in my prayers.

Judy

Peter3 profile image
Peter3

Hi Caroline,

So sorry to hear about your situation. You certainly have one very positive attitude.

Really hope there is some light on the horizon for you.

Best wishes.

Peter3

We are all thinking of you, stay strong, I wish you better days very soon. xxxx

NannaB profile image
NannaB

Oh dear Caroline, I thought I was having a difficult week. I pray that He will give you His special peace and keep you and the rest of your family strong.

Nanna B

summergirlx476 profile image
summergirlx476

Dear Caroline..I'd say you have more than a down pour. This is the thing about this site, when you think you are going through tough times someone posts something to make you look at your problems as NOT so bad after all. Stay strong and know that we are all sending you hope and healing. Hoping for the best for you and your family.

A caregiver, Linda

CarlaL48 profile image
CarlaL48

Oh, sweet Caroline, we just had a major blow delivered today (won't bore you with it now). And we've known for some months that my husband may have PSP (not confirmed yet), but he was falling up to 22 times a month until a couple of weeks ago, when he can no longer walk at all.

Anyway, the major crisis today sent me into a real pity party, in spite of my reliance on the Lord. Perhaps He directed me to your post, 'cause my problems do indeed pale compared to what you're currently facing.

I keep thinking of Matthew 11:28: Come to me, all who labor and are heavy laden, and I will give you rest.

Lay your burdens on Him, darlin', and many of us will be praying for your peace that passes all understanding.

Carla

carolinesimmons profile image
carolinesimmons in reply toCarlaL48

Carla, thanks for your lovely words. The Lord is indeed good. I got word this morning that my son has turned the corner and though he is very sick, he will recover. My son-in-law's father died yesterday - a blessing itself since he didn't know his family. But remember, my problems don't in the least diminish yours. It sounds as if your husband has had PSP for quite a while. Bless you for caring for him.

Caroline

jimandsharynp profile image
jimandsharynp

Caroline, I know what you mean about having your faith to give you support in times of trouble. I remember when I lost my first wife to CJD (brain disease) attending a widowers group and some of the men were really struggling with the loss of their spouse. I asked the facilatator of the group how people with no strong faith to support them make it in these situations. His answer, "many don't". Hang in there and just do your best, don't second guess your choices, extend love.

Jimbo

Not what you're looking for?

You may also like...

Update on Medical Professionals and how to access dental treatment as housebound

Hello, further to my last post, my father in law has had a visit from the Parkinsons Nurse and he...

Hospice-ask your doctor and look into it.

Our neurologist recommended hospice for my husband in dec 2018. My father was dying and put off...
susantigner profile image

Sudden tremors

Looking for some advice please. My mum has PSP and both her and my father live with me. My dad is...
Sarah1972 profile image

Sharing a moment!

Hi, just thought you would all appreciate this little story. At the end of Steve's funeral, his...
Heady profile image

Explaining to the kids about CBD. . . after one overheard

A really unfortunate thing happened today . . .we're traveling (which is how I saw Anne!) and while...

Moderation team

HelenPSPA profile image
HelenPSPAAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.