Mom has had chronic UTI's since mid December. The urologist believes although she is catheterized the infection is caused from retention of urine. He stated that straight catheterizing her four times per day would be the best method to get the infection under control. Rigidity and pain while rolling her to catheterize helped her decide that this was not something she wanted to do so she was catheterized again with an indwelling.
We have had UA's done and the infection continues to be there. Treatments with oral and injectables have been done. The last UA that was positive was done eight days after treatment with antibiotics was done. It was positive.
When the Hospice nurse asked mom if she wanted to continue treating the UTI's she answered "Yes" emphatically. For a person who can barely speak at all it was obvious that she is not willing to give up.
Now we are at a juncture where Hospice is willing to take her on although they will not do UA's nor use antibiotics to treat the infection. This most likely will lead to sepsis. They will treat her with pain and comfort meds for that condition. Their assessment is that there is no more quality of life treating her UTI's.
The GP met with us. She has been working with mom since 2008. Mom has great respect for her. The doctor stated that she believed mom continues to have quality of life and that she would treat the symptoms with antibiotics as necessary.
So... what to do? My mom is a fighter and will continue to try to 'beat' the PSP. How/when do you decide to discontinue treatments? If the infections aren't kept at bay the sepsis may set in. It seems to me that without treating the infections I am causing progression of sepsis. I have tried to talk with mom about this but there is no response at this point.
If I had another chance to go back one year I would have asked her then how she would have wanted to deal with this situation. I never saw it coming.