Does any PSP Patient eligible to Claim Continuing Health Care

[rainbow33]

Wonder if any body as been succesfull in claiming continuing Health care inb England.

[Hidden]

Geoff was successful, about 6 yrs ago, and it carries on TG xx

[JoJo-K]

My mum has PSP and is in the later stages of this awful condition, she is in a fabulous residential home, where we hope she stays as long as possible. When the time comes we are hoping for palliative care at a hospice. My Dad received CHC almost 3 years ago with symptoms almost identical with PSP, after the assessments were done it was awarded very quickly, we live in Wales though. Not sure if England is more difficult to obtain. Hope this helps....a supportive social worker makes all the difference in my experience.

Best Wishes Jo xxxx

[Hidden]

Dear Rainbow 33

Age UK have an excellent information sheet on CHC so it may be worth looking through that for some guidance. If you need any further information you could call the PSP helpline.

[Shelagh]

My Husband Ronnie has just received CHC it has taken two years to get there and it seems to be in the last stages. Our Community Matron had it fast tracked along with the Dr's recommendation after the day centre refused to take him any more following a couple of choking incidents, it was all done in 24 hrs. we now have carers coming in 3 times a day shortly to be 4 times a day every thing is suddenly moving so fast after years of just coping, don't give up on trying it does happen eventually I wish you well in your efforts its hard work being a carer I have been looking after Ronnie for 8 years the last 18 months with him getting noticeably worse we need all the help we can get.

[sebitha]

My Mum had PSP and I got CHC for her, she was turned down in her home town but I moved her close to me for her last year, she was then under Kensington & Chelsea, London. I made sure that I led & supported her through the process. She sat in the assessment which helped as it emphasised her 'behavioural changes'. I had the paperwork that covered the grounds she had previously been declined on and therefore knew that that first assessment hadn't covered everything accurately, also crucially hadn't connected how one symptom impacted another.

I hope this helps you, Best wishes

[rainbow33]

I am still waiting for a diognosis for my Mom for PSP she had one Continuing Health Care done in 2009 and was turned down. In 2010 she fractured her hip due to a fall they could not operate due to a fall. So she cant do any think herself and she has having to pay for her care privatly. out of her own money. She moved in with us in 2011 and I asked this week about having another one done and was told she woud be turned down again.

It makes me so cross.

I feel like writting to our local MP.

There should be more finances avalible for the elderly disabled people.

[Hidden]

Mum got it approved and post dated but unforgivably the person who had got it approved left it in a drawer unprocessed and went sick for 6 weeks. We got it a week after mum died, I think it should be allowed for the middle stage in the care of PSP as it would make their life easier to have either the best care or extras like physiotherapy to relieve aches and pains, aromatherapy, aids to improve their general life and trips out etc. It was of no use to mum at end stage which is when she was approved. They really only gave it when she had absolutely no quality of life left. So cruel.

[Hidden]

Yes we have CHC and recieve 24hour care at home for my husband.

It was a fight aided in no mean part by our wonderful advanced nurse practitioner from sue Ryder so no don't give up as you can imagine its made the world of difference to our lives

[Sun16flower in reply to Hidden]

How did you get referred to Sue Ryder mum who is deteriorating very quickly is not getting much in the way of support from health care professionals

[highhopes]

my wife got that,and been in a nursing home for six weeks for restbite.

I think PSP is worse than any cancer.

Shropshire is a good county for getting help.

more so if you are under 65

[MoragR]

We live in East Sussex and my dad was living in a care home. He was refused funding a year ago and only got it for the last two weeks of his life after the doctor changed his care to end of life care.