I am happy that members are being granted continuing care. I feel as though I am drowning in information but no results with anything. I was told this month after chasing that Frank had an assessment in March but i was given no information of this. and not deemed incapacitated enough for the CC. He feeds himself slowly and messily, tries hard with speech some can get deciphered. He is in the care home, in wheelchair, I have passed on all information of the PSP and he does get looked after well I just don't understand who actually says "Yay or nay to applications. for CC We do get FNC but we pay all the weekly costs ourselves. The speech therapist has seen Frank several times but no one as regards the PSP has been in touch since he was first diagnosed 2008. Case of "Yes, he has PSP, now close the door on your way out"
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