My dad has Psp and has been diagnosed over 4 years ago. He is 70 years old
He is at the last stage of Psp and currently he is in hospital due to pueomia.
My dad has lost considerable amount of weight his doctor sent him into hospital as his chest was building up of flem. He is now in hospital being fed by neg tube.
And our plan was to get him better and get a peg fitted so he can come home.
When my dad was at hospital the first week he was getting better then they found raised blood crp of 178 now when he went in to hospital his blood result showed crp 41 so with him being in hospital he has caught another infection. This is prolonging him having a peg fitted. Just wanted to know at what level of my dad condition they can fit a tube. Doctors keep saying that he not too fit to get one done until his chest becomes better.they can't get the correct medication to clear his pueomia. It's like a vicious circle of him getting better and then feeling unwell again. So I have asked to speak to consultant regarding the peg fitting.
This is a cruel disease. Doctors keep saying that if we do a peg he may not recover. Then they say we can't give too many antibiotic. Also they are opting trying to opt the peg by saying that he may need to have only the neg. neg tube has been terrible because my dad pulled it out on last Monday and dad had to wait alll day for an X-ray they finally got one done to make sure it's in the correct place. Again on wedneday my dad pulled out the neg tube firstly it was not put in down enough so dad was sent back to ward for dr to check on X-ray then tried again so I told dr to stay in X-ray department to see whether it was placed in correct position. Just hoping dad gets better to fit peg then go home
And I understand that he will aspirate salive even with a peg.
Perhaps if my dad had a peg few months ago he would have not lost lots weight.