I always read your blogs and questions so thank you everyone for taking the time to put your feelings and advice on this site. It is sad to know we are not alone with dealing with all the problems this terrible condition throws at us.
My husband has been 'off his legs' since Friday and the aggression etc is getting so hard to deal with, I know I am not alone. Thankfully we have great support from our PSP nurse specialist, Tony's social worker, OT and GP and today had a visit from a Cosultant Geriatrician who has discussed changing the medication Tony is on. I feel very drained emotionly today as the consultant spoke about the need to discuss the future with someone, my heart goes out to you all that have lost a loved one to CBD or PSP.