Nosebleeds: Hi, How many of you are... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,392 members10,588 posts

Nosebleeds

Madmumma profile image
5 Replies

Hi,

How many of you are getting regular nosebleeds that continue for an hour or so, even when INR is in range?

Never had a nosebleed before; been on Warfarin for over a year, not now had two in two weeks where it takes over an hour to clot. Took INR test during both episodes and it was fine.

Have a good day! Spring is in the air!

Written by
Madmumma profile image
Madmumma
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Mermaidatheart profile image
Mermaidatheart

I have had nose bleeds on a regular basis since childhood. Same now, no explanation why. My INR is just fine as well. I guess I just consider me being me. 😆

Madmumma profile image
Madmumma in reply to Mermaidatheart

I’ve never had them until recently. This one wasn’t so bad but the last one it was gushing like a tap on and off. Bit scary!

MaryF profile image
MaryFAdministrator

The only time this happened to me was actually when on a drip in hospital, when I had developed clots, a few during pregnancy, but this was not Warfarin, but I remember them deciding my blood had gone too thin, but this was around 36 years ago, so my memory a bit scanty of the finer detail. MaryF

Pooky7 profile image
Pooky7

funny you posted this. Had a nosebleed out of the blue 2 days ago. INR tested 2.9. I have not had one for at least 20 years. And I am also hemophiliac B. Never bleed or bruise. Something in the air?

sailorbaejon profile image
sailorbaejon

I used to get regular nosebleeds for many years. Post-stroke, and prior to APS diagnosis, was taking clopidogrel, and nosebleeds were still quite common and of long duration, e.g. 30-35 minutes. Now off the clopidog, and on warfarin since July 2023, and - touch wood - have not had a nosebleed since then (and remained in INR range 2.0-3.0). Note, I've also entirely stopped drinking alcohol since July 2023, I'm never quite sure how much of a thinning effect that was having on my blood...??

Not what you're looking for?

You may also like...

Unstable INR

Hello again everyone, I hope you are all well and coping in the heat? Hopefully somebody can help...

Warfarin, plavix and alcohol?

The dr’s say don’t drink. The pharmacist says don’t drink but only because over use of alcohol can...

Self testing INR in the United States-Has anyone had any luck getting self testing machines that are covered by Medicare

I live in NYC-Manhattan and have had intravenous INR testing and now quick stick testing. I was on...

Warfarin INR - too high but infrequent monitoring

Hi Folk, I'm just getting a little concerned that my local Anticoagulation Clinic is understaffed,...

APS & Severe Diverticulosis? or anything similar

Has anyone experienced or come across severe Diverticulosis or anything similar in relation to APS?...