APS Discovered?

[yodak]

What year did APS get named as a syndrome? I had APS in 1968 (could not pass blood test required in NC) to get married. Later in 1970 the Army said I had syphillas but I did not either time. Still in 1971 I had blood clots in lungs. Doctors did not know what it was? Treated with Coumadin saved my life!!!

[MaryF Administrator]

Hi there, and welcome, I am attaching this link from the charity for you to have a look at: ghicworld.org/hughes-syndrome/ Welcome, by the way.

MaryF

[Mermaidatheart]

I believe sometime in the 80's

[Tofino5]

Interesting story, mine is similar. I donated blood in 1970 or ‘71, and the blood was destroyed due to ‘venereal disease’. I had to report to the state health department and get tested, it was crazy! There they determined that it was a false positive. But the blood was already destroyed. It had taken a long time to get the blood too, bkz of my tiny veins. So, I went on to have a DVT and pulmonary embolisms, never on a blood thinner until I was diagnosed in 2006! Glad you’re doing okay!

[KellyInTexas Administrator]

True veterans ...

I think it was either 1983 or 1986.

Other doctors in the past had noted at least one of the antibodies the and maybe identified it as prothrombotic. I think as far back as the turn of the century, and again maybe in the 1950’s. Ive read about this- it’s been mentioned many times.

To the best of my knowledge, However, No one had assembled a team though, and really studied it in depth in a meaningful way with the intent to affect a purposeful outcome / treatment and / or submit an academic paper until professor Huges did as principal investigator along side his amazing team of researchers and scientists.

It was a collaborative effort- which is what good research is always about at top institutions. ( which is another collateral damage down stream of a Covid 19- research has come to a near halt in many fields of research...so very sad.)