APS Discovered?: What year did APS get... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,397 members10,601 posts

APS Discovered?

yodak profile image
4 Replies

What year did APS get named as a syndrome? I had APS in 1968 (could not pass blood test required in NC) to get married. Later in 1970 the Army said I had syphillas but I did not either time. Still in 1971 I had blood clots in lungs. Doctors did not know what it was? Treated with Coumadin saved my life!!!

Written by
yodak profile image
yodak
To view profiles and participate in discussions please or .
Read more about...
4 Replies
MaryF profile image
MaryFAdministrator

Hi there, and welcome, I am attaching this link from the charity for you to have a look at: ghicworld.org/hughes-syndrome/ Welcome, by the way.

MaryF

Mermaidatheart profile image
Mermaidatheart

I believe sometime in the 80's

Tofino5 profile image
Tofino5

Interesting story, mine is similar. I donated blood in 1970 or ‘71, and the blood was destroyed due to ‘venereal disease’. I had to report to the state health department and get tested, it was crazy! There they determined that it was a false positive. But the blood was already destroyed. It had taken a long time to get the blood too, bkz of my tiny veins. So, I went on to have a DVT and pulmonary embolisms, never on a blood thinner until I was diagnosed in 2006! Glad you’re doing okay!

KellyInTexas profile image
KellyInTexasAdministrator

True veterans ...

I think it was either 1983 or 1986.

Other doctors in the past had noted at least one of the antibodies the and maybe identified it as prothrombotic. I think as far back as the turn of the century, and again maybe in the 1950’s. Ive read about this- it’s been mentioned many times.

To the best of my knowledge, However, No one had assembled a team though, and really studied it in depth in a meaningful way with the intent to affect a purposeful outcome / treatment and / or submit an academic paper until professor Huges did as principal investigator along side his amazing team of researchers and scientists.

It was a collaborative effort- which is what good research is always about at top institutions. ( which is another collateral damage down stream of a Covid 19- research has come to a near halt in many fields of research...so very sad.)

Not what you're looking for?

You may also like...

Recently diagnosed with Primary APS

Do not know how long I have had this.  I did have a few early miscarriages in the first 2 months of...

Is APS hereditary?

My sister was recently diagnosed with APS trying to help as much as I can. She keeps encouraging me...

Keto diet and aps

Hi I joined a while back. I find this site very informative I did a lot of reading about aps. I was...

Aps

I just wanted to know if you all are on blood thinner? I have aps and had a pulmonary embolism, I'm...

Aps newbie

Hi everybody I'm New here I was diagnosed with aps in 2010/2011, I have had 17 misscarriges and...