New to this

[Bluma]

This is all reasonably new to me. It’s tiredness or lethargy or just downright exhaustion associated with APS?

[Wittycjt]

Absolutely its a disease that affects our mitochondria- the cells powerhouse. So we do get exhausted and the heat can make it worse so be careful in what you plan doing for the day

[Bluma in reply to Wittycjt]

Thank you for your quick response. I have 2 diff cancers - 2 blood syndrones -3 brain strokes & 1 eye stroke with too many other complicating factors - but lately - my energy and strength have gone down the crapper!

My MD didn't talk about anything but the meds like warfarin and lovinox and the antistatins that I - I take and their importance. Tomorrow I will start doing my own INR testing. Other than that I know nothing about how my body may respond to this antiphospholip stuff. I'M JUST TIRED!

[HollyHeski Administrator in reply to Bluma]

Hi, yes we get fatigued but for me it's all worse when my ferritin and B12 us low.

I suggest you talk to your heamatologist that hopefully knows all about APS and can get your bloods checked, esp as you've had cancer and not knowing what treatments you had, your stores could be low.

[MrsMouseSJ in reply to Wittycjt]

That's interesting, I hadn't heard that APS affects the mitochondria. Can you tell me a little more; point me in the direction of key research/a website?

I say this because, nearly 15 years ago, I was 'diagnosed' with M.E./CFS (perhaps misdiagnosed, now that I have diagnoses of Lupus, APS, a genetic condition, etc). Anyhow, some doctors in the M.E./CFS field have been/are interested in the role that mitochondrial dysfunction plays in the illness and there are private tests that can be taken (e.g. via Biolab) which assess aspects of mit function. I paid for such a test, which highlighted that my mito function was severely compromised and I started to take D Ribose, Acetyl L Carnitine, Vit C and CoQ10 on a daily basis. I still do. Without it, I would have problems even getting out of bed and moving about the house. These nutrients have been a gamer changer for me - although I still suffer severe fatigue and I can no longer work/socialise normally.

[Wittycjt in reply to MrsMouseSJ]

Google affects of aps on mitochondria

[MaryF Administrator]

Hi, please do get your GP or consultant to not only test your Vit D levels but also Ferritin, Folate, B12 and also a full Thyroid panel, as these, if low can make you feel even worse on the fatigue front. MaryF

[Bluma in reply to MaryF]

TY

[Lure2]

Hi,

I say Good Luck with the selftesting!

What terapeutic level of INR has your Hematologist decided for you?

[GinaD]

I always wondered why an early morning swim was like an extra energy shot to my body. I never got the same boost from other aerobic exercises. An issue with my neck arthritis had turned my daily swim into also a daily shot of pain that lasted all day. So....? What to do? Then I heard on some show Dr Hyman say that... those cold showers our grandparents praised? Just a few seconds of cold ( like getting into the pool) will alert your body as to which mitochondria are old and not processing energy efficiently. The body will then immediately replace those old, lazy mitochondria with new, faster helpers.

So now, on my morning showers, I step into the water before it gets warm and that gives me that same, welcome shot of energy.

It sounds ludicrous, but for me, it helps. And is this observation applicable to you... ? But I thought I'd share.