I’m sorry to be a huge pain but I am on several other HU Forums, not because I do or don’t want to be but because I’ve just learned of yet another diagnosis which medics have found. I just can’t believe it. I’m scared to go anywhere near a surgery, clinic or hospital in case they find anything else.
My latest diagnosis is APS, which, when added to the NASH, Cirrhosis, Insulin dependent diabetes type 2, Metabolic Syndrome, Diverticulosis, and loads of other stuff, I’m too tired to remember them all now, is just getting too much. As I started last week with frank blood in my wee, that maybe is another reason to add more diagnoses to my woes. Could it be kidney or bladder cancer - I ask myself??? Surely not?????? I’ve already had cancer 20 years ago, and had a breast removed because of it.
So, I know nothing of APS, other than, being on Warfarin for 24 years , my body is now saying - enough is enough!!!!! All I really would like to know at this late hour, and from those who’ve trodden the same rocky road as myself thus far, is the following:-
Q. Does APS cause blood in wee, along with excessive bleeding from mouth, every night and morning, even when INR is within range for me????? Or, could one of the other health issues I have, be playing a part? The daily mouth bleeding is getting worse and now it’s in my wee. The former started 3 years ago and the latter, about a week ago?????
I spoke to my GP this (or yesterday morning now), and, to say she was not helpful, is putting it mildly. She was more interested in my (mental health status), which just irritated me!!!!! This, despite I have a history on that topic as well!!!!
All I ask of you, when you get up later on and read this over your Weetabix, please do not prejudge me, please don’t think I have an obsession with wanting all this stuff. I hate where I am, I have no quality of life, I feel dreadfully sorry for everyone struggling to have health issues explained by a biased and prejudiced medical profession who, as soon as they hear you have or have had some kind of mental health issue, patronisingly then exclude all explanations beyond their perception of you, which unfortunately, is usually negative.
If you feel so inclined, most of my input to HU is via the Liver Trust Forum which you can read whilst listening to some relaxing music!!!!! You may get more help and insight about some issues, by reading exactly what I have had to put up with. At least I hope it helps you in some way????? I’ve yet to understand more of what APS is all about!!!!! That’s going to take sometime methinks!!!!!
Thanks for wading through all this xxx