Hi ! I was recently diagnosed with APS after having a stroke. I tested positive only for Beta2
Glycoprotein1 Ig M. I tested positive for this 7 years ago, so it’s defiantly positive. Does
Anyone tested positive for this one marker, and if so how are you treating it - what anti coagulant? Now I am on 325 mg aspirin but warfarin is being discussed. I am 3
Weeks post stroke. Thank you for your input. This is so scary. I am in the US, 51 yrs old. No other symptoms - otherwise healthy. Hemotologist suggested this related to allergies.
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Hi, it is important that you have a specialist who fully understands Hughes Syndrome/APS to help yourself and your GP safely manage this condition, there are some here on the charity website: ghicworld.org/medical-advis... We have a lot of members from the USA on here, plus KellyInTexas has great localised knowledge of the USA regarding specialists. Welcome, by the way. MaryF
Im in delaware, are you close? I suggest they retest you for all APS studies as they all maybe positive now. Do you have any residual affects from the stroke? Weakness, etc?
Hello! No, I am in California. They just retested after my stroke, on June 12. All negative except Beta2Glycoprotein1 IgM. I was very lucky with my stroke. Almost 4
Weeks post stroke and i have regained all my function. I have no symptoms of APS besides the stroke.
You are very fortunate make sure they anticoagulate you properly now so it wont recur... ive had 3 back to back when they did my open heart surgery and didnt anticoagulate me correctly. It took alot of rehab to get me back to my quasy self . Read my bio- good luck
I am on aspirin now - 325 mg. Hemotologist said I should be on antiplatelet therapy vs warfarin. Everything i read says I should be on warfarin. Do you think specialist would help? It would have to be a consult - online - as med insurance is with an HMO.
Definitely find someone who understands APS. You will be told that of course, a Hemotologist will understand it but many truly do not. I know it's not the best way to do it but I looked at Hemotologists online to see if APS was mentioned in their studies or specialties. I also have a Rheumatologist who had another APS patient and referred me to someone.
I agree with the above, you need a specialist. APS/Hughes is complex, and many doctors don't have a feel for it. I'm in Colorado and I'm very fortunate to have a wonderful specialist right here. My situation is very different from yours. I'm very happy to hear you are fully recovered from the stroke.
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