Heat affecting me worse then ever - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,402 members10,612 posts

Heat affecting me worse then ever

Wittycjt profile image
4 Replies

Dont let this happen to you!

Trying to avoid heat exhaustion like i experienced last summer. That was awful. It happened because i was out working in my yard/garden not paying attention to the heat because it really wasnt bothering me, i was fideling around all day, ate dinner, showered lay down to sleep and room started flipping around like a fast paced credit on a movie screen and i mean really fast. I started vomiting and tried to stand and couldnt because I couldnt get my balance. I called my husband to help me and thank heavens he was there. We thought i might be having another stroke. Ambulanced to the hospital and had full work up, then was admitted for observation and many bags of IV solution, I then felt better. It was very scarry so please make sure you limit your sun exposure and hydrate, hydrate.

Dont let this happen to you!

And be wary of alcohol and caffeinated products as they will evaporate the fluid right outta you. Youve been reminded🥰🤗

Written by
Wittycjt profile image
Wittycjt
To view profiles and participate in discussions please or .
4 Replies
Lure2 profile image
Lure2

Thanks very much for reminding us. Take care as you are an important person here!

Best wishes!

GinaD profile image
GinaD

When I was a student at Vanderbilt in Nashville one summer term I had a few attacks of heat exhaustion and one event of a life threatening full blown heat stroke. (Now that I have had APS induced mini strokes as well as that heat stroke I know why they call it a heat STROKE. The feelings and symptoms are so similar.) But I digress...

So.... one would except that in my 60s I would be even less tolerant of heat, right? Wrong. A better diet, and magnesium supplements have made a huge difference. Back in my younger days I rarely worked up a sweat. Now, this summer with our temps in the high 90sF I sweat buckets but, as long as I drink a lot of water and dont do anything stupid, I feel fine.

So my addendum to you in this horridly hot US summer: yes, hydrate, hydrate, hydrate. Avoid alcohol and caffeine. Wear a straw hat if in direct sun. And, unless these are "No Nos " due to your individual health profile, add some magnesium and potassium rich foods to your diet: bananas, avocados, nuts. And if you dont sweat a lot, despite drinking a lot, time to discuss this with your doctor. You might profit from supplements.

Wittycjt profile image
Wittycjt in reply toGinaD

I have many hats now too👨‍🌾

Ozchick profile image
Ozchick

We are fairly used to very hot summers in Oz but last one was a stinker. Don't think i would have survived without A/C and water!

Not what you're looking for?

You may also like...

Heat intolerance?

Does anyone suffer from heat intolerance with hughes syndrome? I haven't actually been diagnosed...
babyblooeyes profile image

HEAT TYPE FEELING IN HEAD

I just do not know how to describe this, but at times, when having a funny dizzy feeling I get this...
daisy11 profile image

Weird sensation of heat

Hi everyone... has anyone ever had this before? I have a weird sensation of heat around the center...
lovemyheart profile image

APS - Triple Positive High levels

Hi everyone! Im new here, posting... not so new reading as i have been reading everyones posts...

Wondering whether gabapentin is making my headaches worse?

My headaches were really, really bad until I went on clopidogrel and then they cleared up within a...
Paleosooze profile image

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
HollyHeski profile image
HollyHeskiAdministrator
lupus-support1 profile image
lupus-support1Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.