Professor Graham Hughes' Monthly Blog - July 2019

[MaryF]

ghic.world/blog/july-2019

MaryF

[HollyHeski Administrator]

Thank you & Prof x

[overnighthearingloss]

Third professional...... old school and hardcore 😀

[lupus-support1 Administrator]

Thank you Mary. I will repost to LUpus Patients Understanding & Support (LUPUS)

[Lure2]

Thanks Mary and prof Hughes for the July-blog!

Hope she is able to selftest even if she is triple-positive with high titres incl Lupus Anticoagulant (like me). That can be difficut but it can be done with the help of a Hematologist and a Coagulation clinic who understands APS and how INR behaves.

[Tofino5 in reply to Lure2]

Yes, unless she’s spikey, like me. I also am triple positive with high titres, and have the big 3. I tried to get self testing to work but the readings were both high and low, so it could not be trusted, in my case.

Self testing is a gift, a nice thing in the land of not nice APS.

Thanks for posting the blog.

[Tofino5]

But it is sad that the third doctor said, ‘keep the warfarin, sell the horse’.

[Kerlampert]

Good monthly report...and the case Dr. Hughes discussed sounded remarkably familiar to me!

Thanks!