Tingling in finger tips: I was... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Tingling in finger tips

msins profile image
7 Replies

I was diagnosed with APS in 1992 when I had a stroke. Fortunately, I had suffered no side effects from the stroke. I have recently had my aorta valve replaced and with this support group's advice, of making sure I had a bridging plan in writing in place, for my surgeons to follow, I had a successful surgery. My question is: does any one suffer from numbness or a tingling, prickly sensation in their figure tips. I'm trying to find out if this is a circulatory problem or part of the APS condition.

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msins
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KellyInTexas profile image
KellyInTexasAdministrator

Hello,

APS is is linked to the circulation system if / when the INR becomes too low.

That said, that’s not the only reason for pins and needles.

Please have a look under the ,” pinned posts” section and click on and vitamins and mineral post that was put on.

The thyroid needs to be checked, ( full, extended panel), as well ferritin level, Hemoglobin, and the vitamin B 12.

Another consideration is of course cervical spine issues, ( I think you would know about that.)

It’s worth considering the nerves in your body. A few issues can impair their optimal functioning, some directly and indirectly related to APS. ( poor blood flow can affect finger tips. )

Ask your doctor about a nerve conduction test. Mine showed I had CIPD. My sister also has this. Auto immune diseases tend to run in Gangs so it warrants mentions since you are tingling.

As far as Raynauds, that’s quire easy to rule in or out. I have a strong Raynauds- and tingle from time to me- and am numb from time to time- but I have herniated cervical discs that do come in and out of place. ( no ruptures, and cord signal is ok.) this started at age 26.) So its hard to me to say what is what.

As we say- it’s all patient to patient dependent. I think the bigger challenge for many patients and physicians alike is knowing what specialists to see first- in what order.

A well seasoned GP who understand APS and advocates for you to see APS specialists , and stays in communication with those APS specialists will be invaluable. They are the conductor of your particular, individual orchestra piece your body has chosen. Lots of individual body parts playing a role in the overall piece .

lupus-support1 profile image
lupus-support1Administrator

Please go & discuss this with your doctor! Your symptoms can be many things. Only a doctor can diagnose!

Be well!

With good wishes,

Ros

KerryA profile image
KerryA

It could also be carpal tunnel syndrome. Ask your GP to check for this

Wittycjt profile image
Wittycjt

Congrats surgery was success- i know you were worried. Did you use the ideas i had given you? I hope it was made easier that way. Did you have any issues at all...meaning anything i should reassess? Glad youre well. So good to know!

msins profile image
msins in reply toWittycjt

You absolutely did help me. Went to my hemotologist for the bridging plan which I got in writing and presented it to my surgeons who followed it to the T. Thank you so much for your helpful advice.

y

Wittycjt profile image
Wittycjt in reply tomsins

Glad i could help and that you didnt have any bumps n your road👍👍👍👍

Debbweb01 profile image
Debbweb01

My fingertips tingle all day everyday! Never thought related to APS BUT MAYBE YES ! Thank you for bringing this up! I’m still learoeveryday

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