Black vertical little lines on nail beds - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Black vertical little lines on nail beds

wgsuzy profile image
20 Replies

Just thought I would ask if anyone gets these? They don't hurt, or was cause by trauma or from black pen. Just notice 2 more? Been getting them in last 6 months. Just curious..

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wgsuzy profile image
wgsuzy
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20 Replies
Lure2 profile image
Lure2

It is probably "Splinter Haemorrhages".

Prof Hughes writes about it in his book; "Hughes Syndrome: Highways and Byways" : "Some patients with valvular heart disease and with Hughes syndrome have recurrent splinter haemorrhages making this a major differential diagnosis from infectious endocarditis". Under the picture; Splinter haemorrhages and thrombotic occlusions in the small blood vessels under the nail.

wgsuzy profile image
wgsuzy in reply toLure2

Than you.

Stereolover profile image
Stereolover

Hi I still get them even though I’m on blood thinners for APS. I was told by the rheumatologist whose care I was under that they’re a sign of APS. Mine aren’t necessarily vertical, hard to tell really as they’re so small. Broken pieces of a splinter is how I refer to them. I have one photo and I’m going to take photos every time more appear.

wgsuzy profile image
wgsuzy in reply toStereolover

I'm only on baby aspirin for blood since 2016 when I was diagnosed with APS. No history of clots so far🤞more of memory issues, balance, joint pain, muscle pain, now malar rash

ect

Stereolover profile image
Stereolover in reply towgsuzy

Just out of curiosity what exactly do you mean when you say baby aspirin?

wgsuzy profile image
wgsuzy in reply toStereolover

86mg as a blood thinner, along with hydroxychloroquine 400 mg

Stereolover profile image
Stereolover in reply towgsuzy

I don’t think taking 75mg is enough for me. I’ll see what happens at my appointment in September. Thanks for your reply.

KellyInTexas profile image
KellyInTexasAdministrator

Yes, as lure2 ( Kerstin from Sweden) says, most likely splinter haemorraheges. I also get them. I have one right now in fact.

Race a pic and show to your Hematologist or Rheumatoligist at next appointment.

wgsuzy profile image
wgsuzy in reply toKellyInTexas

Great, will do that. Thanks Kelly for suggesting pic 😘

Stereolover profile image
Stereolover in reply toKellyInTexas

That’s exactly what I’m doing. I have a clear pic on my phone but I don’t know how to post it on here.

KellyInTexas profile image
KellyInTexasAdministrator in reply toStereolover

It’s a shortcoming of this HU platform. You would have to start a brand new post and add your own photo to your own post.

KellyInTexas profile image
KellyInTexasAdministrator in reply toStereolover

You cold go to my new post and put your comment- that might be helpful to others?

KellyInTexas profile image
KellyInTexasAdministrator

Do you want me to post a pic of mine for comparison? Others might find it useful also.

wgsuzy profile image
wgsuzy in reply toKellyInTexas

Yes, please

KellyInTexas profile image
KellyInTexasAdministrator in reply towgsuzy

Will do now.

Fra22-57 profile image
Fra22-57

I was just showing mine to husband yesterday they seemed to have appeared.For years have seen vertical ridges but not black ones before

Dot69 profile image
Dot69

I also get them and also on my left foot toe nail next to my big toe 😊 A wonderful consultant asked to see my nails after my stroke I had a lot on my nails then and nobody had asked to look at my nails The ones on my toe nail do hurt they just grow out I’m also on warfarin

Stereolover profile image
Stereolover in reply toDot69

I was surprised when the rheumatologist I was under asked to look at my fingernails. I don’t know if I have ever had them on my toenails because they’re always painted. Maybe you could get referred back to the consultant for answers.

Dot69 profile image
Dot69 in reply toStereolover

I see my consultant once a year next appointment is in August I always mention these splinter haemorrhages but nothing is really said. I think they’re quite happy that I’m still running/swimming/cycling/walking etc,

INR is always all over the place I still go once a fortnight to be checked

KellyInTexas profile image
KellyInTexasAdministrator in reply toDot69

No, my Rheumatoligist acknowledges them with the attitude of, “ oh, yes. “

So I’ve not ever thought much beyond that except to take a pic. Usually ( this is just me- I’m a complete weirdo when it comes to APS) I’m having large clotting- DVT’s in limbs despite a very high INR, so we are figuring out the next approach, etc. it has to be documented, as much as possible, to put in my file to support the need / protocol for next steps for trialing what ever is next with me.

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