Newbie

[Ash0507]

Hi I have antiphospolipid syndrome is this the right group?

[MaryF Administrator]

Hello and welcome, and yes you are in the right group for Hughes Syndrome/APS. We learn a lot off each other in here, and the support is good, our associated charity website is here, and full of very good information. Feel free to ask questions and tell us where you are from: ghic.world/

MaryF

[Ash0507 in reply to MaryF]

Thank you very much

[jetjetjet]

Hi Ash and welcome- where are you from -tell us some things about you - your Dia. - what types of doctor's you have , How long you have had APS/ Hughes etc. And of course any questions you may have others here would be happy to share thier experiences with the same things and also our administrators are second to NONE with thier knowledge and scope of this disease. And also the members here are also so much help .

[Ash0507 in reply to jetjetjet]

Hi, I have a haematologist and on warfarin except in extremely unstable so looking at another drug that will calm it down a bit. I'm weekly at the hospital which is a pain . I've only had aps for a year and half. Only because it came up in a random blood test that it was detected. I'm a very placid kind person that loves to go out. I live in Ashford Kent UK

[Clairey25 in reply to Ash0507]

Hi welcome to the group. I have had diagnosis since Jan this year and this group has really helped me. Whenever I have a question about a treatment plan or what is APS and what isn’t, there is always some one on here who has experienced it first hand and can give you their words of wisdom.

[Ash0507 in reply to Clairey25]

Thank you x

[Wittycjt]

Welcome! Yes sorry to have to say you have found the right group. I see you’re in the UK, I’m from the US, hi. Cindy

[Ash0507 in reply to Wittycjt]

Hi Cindy thank you for your reply from over the pond I hope you are well