First post: Hi I have noticed that... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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debiann profile image
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Hi

I have noticed that everyone seems to involved with haemotologists or the other ologist! I have only ever seen a stroke consultant who i cant remember... and a neuro rehab consultant... should i be seeing someone else?

thanks Debs

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debiann
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2 Replies
HollyHeski profile image
HollyHeskiAdministrator

Hi, was you diagnosed with Hughes/APS?

If so, you really need to see a specialist and be on good anticoagulation.

Where are you based?

debiann profile image
debiann in reply toHollyHeski

Im based in the UK...Im on rivaroxaban (for life) was on warfarin but it was changed due to vaginal bleeding but that has continued.... seeing a gynaecologist this week to decide whether to have an ablation or the mirena coil.

I tested twice positive for lupus anticoagulant... which is APS?

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