Hi. As I have told everyone sometime ago, my son suffered his first stroke at the age of 30 and by the time he was 58 had had 12 in all. He was not diagnosed with APS until about 3/4 years ago. Unfortunately, the strokes eventually affected his swallowing so he had to be careful but it also lead to many, many chest infections. Unfortunately, and sadly he passed away last week due to another chest infection turning into pneumonia. It is such a wrench as he took up a big part of every day and I wonder will I every get over this as my life feels empty. Instead of flowers for the funeral I have been asked about donations to APS but cannot find anything here in the UK. Does anyone know where to send donations otherwise I think The Stroke Assn. is the next best area to look. Thanks to everyone.
Donations: Hi. As I have told everyone... - Hughes Syndrome A...
Donations
Dear Zimmer,
We feel ourselves a sort of family here, and I’m so glad you thought to reach out in this way - mainly as Sticky Blood Monitor Says, for support for yourself .
One of the administrators on this forum is a woman named Ros. She is a degreed counselor. She can be of service to you right now in whatever capacity she deems appropriate should you like to avail yourself to her very sweet and soothing soul.
The “bigger picture “ importance of GHIC Charity is not only does it fund stroke awareness and research, but so much more. It benefits studies in heart attack, pregnancy loss/ premature birth, visual loss, kidney complications, dysautonomia, and many more multi system diseases that are brought about due to APS related blood clotting.
I, for one, as well as all reading your post, will always remember your son and his lovely mother.
Oh........ I am so sorry to hear that he has passed away............!
We talked several times during the last 5 years. Hope your own cancer has improved and that you will also be able to take care of yourself. Hope you have someone who you can talk with. You need support now.
Kindest regards from Kerstin in Stockholm
So sorry for your loss. I know there are no words but, I'll text these: May light perpetual shine on him and all your family.
I am so sorry to hear of this. May God be comforting him home may your pain become less and less every day gentle hugs
Hello, I am so very sorry to hear about your tragic loss, that is so very very difficult for you, and I can see you have been given some great details about our charity ghic.world. regarding donations, and the memorial idea is a good one. Please do use our forum as much as you would like to, we are here to be supportive of each other, you are among friends here. Thank you so much for taking the time to write what must have been a very difficult post. I am sending you a large virtual hug, please do keep in touch with us all. MaryF
Im so sorry for your loss - no words can express enough, but better to send our empathy than to ignore.
Big hug xxx
Oh bless you.In your sadness you are still thinking of others to benefit your wonderful son's loss.
I am really sorry for your loss. God be with you and your family.
What?
Stroke
iNR
APS - Foggy and confused.
APS awareness
