Sticky Blood-Hughes Syndrome Support
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Wrong Diagnosis

Wrong Diagnosis

According to my medical records I was told that I had a CVA. Then this last Thursday I was admitted to the hospital with the same symptoms after a CT and MRI was done I was to that I had hemiplegic migraine. I don't suffer with margarines. I know that it was a stroke. I had left side weakness left leg weak walking with a cane and walker in therapy walking very slowly.

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Hi, I see you have just joined, Im sorry you are going through this.

Have you been diagnosed with APS/Hughes?

If so, do you have a specialist, as its very important to have someone who understands our condition?

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Hi,

Did they give you something for your symptoms at the hospital?

If you have our illness please put a new question on here and tell a little more about yourself!

Best wishes from Kerstin in Stockholm

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Was blood work done?

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Yes I I had rountine blood work done but wasn't given anything for my leg pain or arm pain, but they are sending me to therapy and a neurologist. I still have leg pain and I can't lift my leg to get my moms truck. Do the doctors thing we are out of it?

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Hi, have they diagnosed you with our illness? This is done with blood tests 12 weeks apart.

It makes a big difference with how we answer you to whether you have this disease or not.

I do know that you can have migraines that mimic stroke symptoms so seeing a neurologist is a good start.

Please tell us more about yourself?

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I am a Christian strong faith and I am Intune with my body. If something is wrong I want answers. I am and my family believ that I had a CVA. The funny this about this is if this is not a stroke why are you sending me to therapy? The speech therapist said that my lip was twisted maybe the reason that they couldn't find the stroke in time I had already had it before I got to the hospital.

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Its good that you have your faith and family support.

Yes this is all very confusing, at least you will see a neurologist, who hopefully will give you some difinitive diagnoses.

Please read up about antiphosphilipid syndrome, some knowledge may/may not help further down the road.

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Best of luck to you during such a stressful time. I will only add that you do look awfully young in your cozy photo ( makes my want curl up with you in that cozy living room and your comfy couch and have a cup of tea with you!) to have had a stroke. That is another reason to study up on anti phospholipid syndrome, also known as Hughes Syndrome.

As Holly said, may be worth taking a look.

Wishing you recovery and patience and perseverance,

Kelly - from Texas🌵🌶

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