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Hughes Syndrome APS Forum

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Hi can you get to see consultant from Ireland to st thomas see Prof Hunt r Dr Breen ?Hughes syndrome patient

fitzyc profile image
10 Replies

Prof Hunt does not take private patients ..

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fitzyc profile image
fitzyc
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10 Replies
MaryF profile image
MaryFAdministrator

Hi, if you are after a private appointment, I do suggest you ring up The London Lupus Centre, at London Bridge Hospital, they will give you a private appointment for sure. MaryF

fitzyc profile image
fitzyc in reply toMaryF

Hi Mary got to see Prof D'cruz and prof Hughes poped in last year they told me had stroke up INR 3-4 on plaquenil but I'm Ireland all my clinics say and of rd we don't know what to do ..I rang ST THOMAS they said Prof Hunt does not do private patients I would have to go on NHS WAITING LIST ..ive no problem with Docs letters but no APS specialist in Ireland ..

Tucson profile image
Tucson in reply tofitzyc

The waiting list for St Thomas' referrals is actually quite quick I was seen in about 6-8 weeks from referral to Prof. Hunt. I've never actually seen prof. Hunt or Karen Breen but have seen 3 different Dr's in their team but they do discuss everything with each other. The problem I find is 3 different Dr's means 3 different opinions on everything so don't expect clarity.

HollyHeski profile image
HollyHeskiAdministrator in reply tofitzyc

Worth getting a NHS referal for Prof Hunt, she is very thorough, 6-8 week wait apparently. Prof D D'Cruz sees private patients, I think at London Bridge but not sure.

MaryF profile image
MaryFAdministrator in reply tofitzyc

Push them hard to refer you to St Thomas' it is in your GP's interest to have help managing your condition. MaryF

HollyHeski profile image
HollyHeskiAdministrator

Oh & once your under Prof Hunt, and your stable, she does telephone appoitments. She also liases with your GP on everything.

baba profile image
baba

Are you in The Republic of Ireland or Northern Ireland?

Two different health care systems.

fitzyc profile image
fitzyc in reply tobaba

Republic ..I rang Prof Hunt Secretary she said get refal letter from my Gp they send it over ..I was going to go private that desperate ...as here they are Good but knowledge not their ...fingers crossed c how this goes .tks

HollyHeski profile image
HollyHeskiAdministrator

Great - let us know how you get on

lynzy profile image
lynzy

I'm under the care of Dr K Breen on the NHS and I can highly recommend her, but I'm not sure if she sees patients on a private basis

Take care

Lynzy

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