Watch me inplant

[Salmonious]

Anyone heard of this "Watch me Implant" that was just advertised? It is suppose to take the place of Warfin. It would be nice not to have to take anymore pills.

[Manofmendip]

I have not heard of it?

Dave

[Lure2]

Hi again,

Have you asked your Doctor for a Thyroid-panel with all the different bloodtests they should take. Look what Mary F says about it. She knows these things very well indeed.

It is not nice with a lot of tablets but therefor we need to get one Specialist who knows autoimmun illnesses and knows what tablets and bloodtests that are required. That is much much better than seeing several Doctors who know very little and who try to treat with bad luck. So sad!

Replace Warfarin !!?? ........ anyway we are not ordinary users of Warfarin with our sticky blood. Up to now Warfarin is the best treatment (long time planning) for HS/APS especially if we have arterial symptoms.

I wish you good luck!

Kerstin

[HollyHeski Administrator]

Hi, I have seen nothing for a implant replacing warfarin, perhaps give more info. I have seen for AF but this doesnt help us with APS.

Where are you getting your info?

[Salmonious]

I just watched an American add where an older gentleman was rushed to hospital. It was his third trip due to his bleed on Warfarin. They said he could use this implant instead. Why can this not work for Hughes?

[Ozchick in reply to Salmonious]

I would guess that he wasn't monitoring his INR's very well - too high, as (I think) having to keep lower INR for AF.

[Lure2]

We have exstremely thick blood! There are no oral tablets approved for us that have arterial clots and not only vein-clots as we need the higher INR ( over at least an INR of 3.5 to loose symptoms).I do not go under an INR of 4.0 ( if possible) as I get my symptoms back. My therapeutic level is an INR of 3.5 - 4.0. We can however take LMWHeparin (Fragmin) instead of Warfarin but for long time use Warfarin suits us good.

Have your read "Sticky Blood Explained " by Kay Thackray. She has written two books and I have both here in Stockholm in pocket.

Kerstin

[MaryF Administrator]

Hi, your best plan is to work with a designated Hughes Syndrome/APS specialist who not only understands the entire condition but also the link to other conditions such as Thyroid and Sjogrens, and is also up to date with medical trials, any new developments etc including trials. On this forum we do get to hear about such things. MaryF

[johnlane]

Hi I am on RIVAROXABN and I find this works well for me perhaps this might be worth looking into

[GinaD]

A major problem we all have with understanding our disease treatment options, as well as communicating with many doctors is: comparing apples to oranges. People with a fib, or a valve replacement, or a stent in the circulatory system need to take a blood thinner because they have a sticky spot in the circulatory system. But we have, not a small sticky spot, but a whole, entire sticky circulatory system. this means that many drugs that work for the "sticky spot" conditions are not effective for us with the "the whole thing is sticky" condition. Also the specific triggers for our auto immune insanity are not clearly identified. if you look at a chart of the coagulation cascade you will see that this cascade has dozens of dominoes. My personal, I'm-not-a-doctor-opinion is that we can react individually to different dominoes in that cascade, and this may explain why some of us are best treated with warfarin, others heprin, other LMWH, or riveroxiban. It can be complicated and this is why it is very important to have an experienced doctor on your medical team