Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for May 2017

High inr, headache and funny vision

Hi, I'm new here. Was diagnosed with APS a year and a half ago after my second stillborn baby. Unfortunately no one really did anything and I suffered a stroke...

Hi, I'm new here. Was diagnosed with APS a year and a half ago after my second s...

Saralmac

•7 years ago

11 Replies

worried

Hi In 2015 I was in good physical health and then things went down hill continuously. I developed mild tinnitus, then severe tinnitus (with more and more and...

Hi In 2015 I was in good physical health and then things went down hill continuo...

charlieab

•7 years ago

4 Replies

Hi, im new here...

Hi, i was wondering if anyone could help : ) I was diagnosed with me.cfs three years ago and have been housebound since then with extreme fatigue. Ive recently...

Hi, i was wondering if anyone could help : ) I was diagnosed with me.cfs three y...

Kate16

•7 years ago

8 Replies

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Pulse Ox levels

I have been on a CPAP machine and then a BIPAP machine at night to keep me breathing since 1996. Recently had a pulse ox monitoring test at nights which...

I have been on a CPAP machine and then a BIPAP machine at night to keep me breat...

ndstephens49

•7 years ago

3 Replies

Results?

Hi I hope everyone is well :) Just a quick question, finally got my rheumatologist to do the blood test for AS today, how long does it typically take to come...

Hi I hope everyone is well :) Just a quick question, finally got my rheumatologi...

Anyac81

•7 years ago

5 Replies

A bit low, and advice welcome

Been really poorly for the last 6-7 weeks with killer headaches (never suffered from them before) zero energy, hot one minute shaking the next. Anyway, as per...

Been really poorly for the last 6-7 weeks with killer headaches (never suffered ...

Julie_T

•7 years ago

1 Reply

INR Too High/ Infection ?

I know infections infections affect the INR , but I can't remember which direction or by how much. ( I'm sure it's person to person dependent.) I went from...

I know infections infections affect the INR , but I can't remember which directi...

KellyInTexas

Administrator•7 years ago

22 Replies

Look familiar

My knees get like this alot its sensitive painful was briefly told it was livedo this is at its worst but if i warm up it turns bright red.(the redness on ny...

My knees get like this alot its sensitive painful was briefly told it was livedo...

falling2peices

•7 years ago

55 Replies

Going for a 2nd opinion! I believe INR is being kept too low

So I finally have the specialist APS consultant appointment in London this afternoon for my husband and a 2nd opinion! The haematologist he is under insists on...

So I finally have the specialist APS consultant appointment in London this after...

KirstenW

•7 years ago

7 Replies

HELLO, I'M BACK!

I finally got out of the hospital at the end of march. I was continually getting double pneumonia which would lead to pulmonary edema and then to congestive...

I finally got out of the hospital at the end of march. I was continually getting...

ZRHONDA

•7 years ago

13 Replies

Numb arms

Hi it's been a little while since my last post.I've been having issues at night with my arms going numb dead like led while I've been in bed sleeping in my...

Hi it's been a little while since my last post.I've been having issues at night ...

rayl

•7 years ago

22 Replies

How do you know if you APS specialist is actually that?

I have had a pulmonary Embolism maybe 2 or 3 and was possibly diagnosed with APS as sero negative by Rheumatologist in my home town. I was struggling with...

I have had a pulmonary Embolism maybe 2 or 3 and was possibly diagnosed with APS...

Peecue

•7 years ago

11 Replies

APS awareness

Hi, I'm relatively new to this site having found it while researching for my recently diagnosed APS. I developed a DVT in my left calf in December 2015 which...

Hi, I'm relatively new to this site having found it while researching for my rec...

RazD

•7 years ago

10 Replies

23 year old with potential APS

Hello, My name is Alexander. Im 23 years old and i have been diagnosed with central retinal vein occlusion in January. All my tests for thrombophilia were...

Hello, My name is Alexander. Im 23 years old and i have been diagnosed with cen...

Ackoo

•7 years ago

3 Replies

Moving Pain

I have arthritis (I guess). But lately my pain has been in both thumbs, left elbow and now my left foot. That is a new one. It is usually my right toe that...

I have arthritis (I guess). But lately my pain has been in both thumbs, left elb...

Debs2108

•7 years ago

5 Replies

Newly diagnosed with APS

Hi everyone, This is my first post on HealthUnlocked. I was finally diagnosed with APS today which is a relief after suffering 3 back to back miscarriages. I...

Hi everyone, This is my first post on HealthUnlocked. I was finally diagnosed w...

My4angels

•7 years ago

32 Replies

Newly diagnosed with APS

Hi there - I am still in slight shock at my diagnosis. I had an unexplained DVT in my right leg & suspected PE nearly 6 years ago. I was also anaemic. I was...

Hi there - I am still in slight shock at my diagnosis. I had an unexplained DVT...

juanacalpe

•7 years ago

21 Replies

Joint pain

In the past I was diagnosed with Rheumatoid Arthritis then told I had fibromyalgia when I switched rheumatologist. I quit going to doctors and taking meds...

In the past I was diagnosed with Rheumatoid Arthritis then told I had fibromyalg...

Heidi-B

•7 years ago

12 Replies

Llepz treatment and APS

Hi guys, don't know what to do...i got diagnosed with aps post a stroke almost 9 years ago...now I have to a llepz procedure (a larger biosopy than the...

Hi guys, don't know what to do...i got diagnosed with aps post a stroke almost 9...

racheldufficy

•7 years ago

2 Replies

Constant headaches or should I say head hurts

These are just awful I can't function properly my INR is high which they are trying to bring down. I thought after 2 years i should feel better not worse, or...

These are just awful I can't function properly my INR is high which they are try...

Dot69

•7 years ago

20 Replies

APS diagnosis

Met with my consulant who has diagnosed APS. Started warfarin therapy last Tuesday.... 10mg for first 3days.. My inr started at 1.2 and has gone to 2.2...

Met with my consulant who has diagnosed APS. Started warfarin therapy last Tuesd...

Gaqn

•7 years ago

24 Replies

Anyone experienced flare ups on mouth ulsers,swollon lips(inside) and sore tongue??

Hi i have aps and test possitive for lupus and have had this flare up twice since diagnosis and im wondering if anyone has any advise for me please. I have...

Hi i have aps and test possitive for lupus and have had this flare up twice sinc...

gemgemz

•7 years ago

9 Replies

Warafrin bruise

Does anybody know of a good make up to cover up bruises

amy1808

•7 years ago

7 Replies

Teens on warfrin

My 15yrs is on warfrin has been for 8months now he got blood clots in his lungs after an accident. Since hes been on it he just stays home, has withdrawn from...

My 15yrs is on warfrin has been for 8months now he got blood clots in his lungs ...

Natwa

•7 years ago

2 Replies

Homocystine levels

Has anyone been told that they have high homocystine levels? Is it common for APS?

Has anyone been told that they have high homocystine levels? Is it common for A...

Saltydogs

•7 years ago

8 Replies

Hello I need some advice on dvt

I have some questions to ask. About 10 months ago I was diagnosed with dvt I took medicines for 3 months and I was clear from it. Now I went to doctor as my...

I have some questions to ask. About 10 months ago I was diagnosed with dvt I too...

julenka1988

•7 years ago

10 Replies

Hughes syndrome/APS

New to this site. I have a positive diagnosis for APS also called Hughes syndrome.

New to this site. I have a positive diagnosis for APS also called Hughes syndrom...

Gregstock

•7 years ago

16 Replies

Thyroid results

Got my thyroid test results: Free T4--.89 (normal 0.89-1.76ng/dL) Reverse T3--11.6 (normal 9.2-24.1ng/dL) TSH--1.948 (normal 0.350-5.500nIu/ml)...

Got my thyroid test results: Free T4--.89 (normal 0.89-1.76ng/dL) Reverse T3--11...

ndstephens49

•7 years ago

6 Replies

How many members have a family member or child with APS?

I'm worried about my daughters especially the youngest she is 22 and has, problems with always feeling tired. dizzy spells as well as bad headaches that can...

I'm worried about my daughters especially the youngest she is 22 and has, proble...

SoulRebel-APS

•7 years ago

21 Replies

Where do I get my Thyroid Tested

Ive found that Spire Hospitals offer many Thyroid testing packages. I found this one- do u think it's any good? £199.25 TSH FT4 FR3 TPI Abs Folate B12 VitD

Ive found that Spire Hospitals offer many Thyroid testing packages. I found this...

WendyWoo50

•7 years ago

2 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for May 2017

High inr, headache and funny vision

worried

Hi, im new here...

Pulse Ox levels

Results?

A bit low, and advice welcome

INR Too High/ Infection ?

Look familiar

Going for a 2nd opinion! I believe INR is being kept too low

HELLO, I'M BACK!

Numb arms

How do you know if you APS specialist is actually that?

APS awareness

23 year old with potential APS

Moving Pain

Newly diagnosed with APS

Newly diagnosed with APS

Joint pain

Llepz treatment and APS

Constant headaches or should I say head hurts

APS diagnosis

Anyone experienced flare ups on mouth ulsers,swollon lips(inside) and sore tongue??

Warafrin bruise

Teens on warfrin

Homocystine levels

Hello I need some advice on dvt

Hughes syndrome/APS

Thyroid results

How many members have a family member or child with APS?

Where do I get my Thyroid Tested

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