A bit low, and advice welcome - Hughes Syndrome A...

Hughes Syndrome APS Forum

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A bit low, and advice welcome

Julie_T profile image
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Been really poorly for the last 6-7 weeks with killer headaches (never suffered from them before) zero energy, hot one minute shaking the next. Anyway, as per my last post my GP thought it was giant cell and prescribed 60mg prednisone a day. Unfortunately, aches and pains improved but not the headaches.

Long story short, appointment with rheumatologist yesterday (first visit as moved recently). She seems certain that Lupus or sjogrens not to blame, didn't mention APS but said she thinks it is a small bleed in my brain and has requested an urgent referral to the neurological clinic.

At home, fretting (not something I usually do) and wondering, well let's say not a lot positive. Correct me if I am wrong but I thought APS would cause clots if anything. I am on daily Clexane injections so my anticoagulation should be controlled.

Any thoughts, ideas, suggestions welcome

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Julie_T

Thanks, just not functioning right at all, normally clear headed and objective but baby and bath water both down the drain....

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