23 year old with potential APS

[Ackoo]

Hello,

My name is Alexander. Im 23 years old and i have been diagnosed with central retinal vein occlusion in January. All my tests for thrombophilia were normal, biochemistry tests also. I made heart ultrasound which was also good. However, last week i did some testing for autoimmune diseases and i got anticardiolipin antibodies IgG 10 (low positive, normal is <5). Lupus anti coagulants and anti b2 antibodies were normal. I was told i have to wait for 6 to 12 weeks to have my test done again and that he suspects that i have APS. He said i should take aspirin 100 until then. However next month i will go to USA (12 hours flight) and i read here that u should take some other medicine. Can you tell me your thoughts on this subject? Can i 'survive' 12 hours flight?

Have a nice day!

[Manofmendip]

Hello Alexander and welcome to our friendly forum.

Firstly, could you please tell us where you are from, as this will help us and other members to help you.

Some members, who are to take long plane journeys, are prescribed Fragmin or Clexane (low molecular weight Heparin) injections to use before the flight. I am on Fragmin for life; I used to be on Warfarin.

Dave

[MaryF Administrator]

Hi and welcome, as a rule, if you are flying over 4 hours, you need something like Clexane or Fragmin prescribed, with the provision for an extra dose in case of flight delays. The test results can go in and out of positive and sometimes people with low results, can still be extremely ill with Hughes Syndrome/APS. I am glad you have bee put on Aspirin.

MaryF

[daisyd]

Hi make an appointment to see your GP ? Asprin and Clexane work in the same way, unlike Warfarin which you would might be given Clexane to cover you