Pulse Ox levels : I have been on a CPAP... - Hughes Syndrome A...

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Pulse Ox levels

ndstephens49 profile image
3 Replies

I have been on a CPAP machine and then a BIPAP machine at night to keep me breathing since 1996.

Recently had a pulse ox monitoring test at nights which determines if the oxygen levels in your blood remain in normal range at night. It a little clip you put in your finger and it records your pulse oxygen levels. It should be 94%or greater. My oxygen level was too low at 88% part of the time at night.

Now I will need oxygen supplementation at night. What a pain. I can put Oxygen Concentrating machine right next to the Bipap Machine which is right next to my pacemaker monitoring device. This is getting to be a bit much.

Does anyone else have this problem? Any ideas on if it is a likely result of APS problems or something separate?

Just wondering.

Nancy in West Virginia

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ndstephens49
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Wittycjt profile image
Wittycjt

Interesting...will be interested in the answers you receive.

charlieab profile image
charlieab

Hi Nancy

I cant offer any advice I'm afraid, as at this stage I dont even know what I have - am being tested for APS and scleroderma. But just wanted to wish you the best. Sounds like you are dealing with an awful lot atm; not to mention a room full of high tech medical equipment. Trouble with these AI type illnesses seems to be that one thing leads to another and you end up with a great deal to have to cope with. Hope that your oxygen level gets back towards normal soon.

best wishes

ndstephens49 profile image
ndstephens49 in reply to charlieab

Thank you charlieab, you, like everyone else on this forum, are so nice!

Good luck to you too.

Nancy

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