Headaches

Really struggling with constant headaches at the minute. Painkillers don't even touch the pain

[MaryF Administrator]

Hi, when did you last see your Hughes Syndrome/APS consultant, are you on Warfarin? and if so target range etc. Also other factors may need to be looked at! MaryF

[Hidden in reply to MaryF]

Just replying today to see if it works. Thanks for your advice xx

[Lure2]

Have you got a diagnose now of Hughes Syndrome or is it Lupus? Hope you have a Rheumatologist who knows autoimmun illnesses very well.

Best wishes from Kerstin in Stockholm

[Hidden in reply to Lure2]

Definite Hughes Syndrome, possible lupus.

[ndstephens49]

I have had severe headaches since I was a child. In the 1950's no one looked into headaches. When I was a teenager I started taking aspirin every day. Worked marvelously. When Tylenol came out in late 1960's, I tried it for headaches and it did NOTHING. Back to aspirin. Not knowing any better, I took aspirin during all 3 pregnancies and had no problems.

I still have headaches and am realizing after reading posts here that my INR is probably not high enough. So now I am shooting for around 4. I suspect that may cause decrease in headaches. My GP has agreed to higher INR but my hematologist is nervous about it. Nancy