Organ donation and giving blood - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Organ donation and giving blood

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Am I right in thinking that I won't be able to give blood or donate organs because I have APS and possible lupus SLE?

7 Replies
MaryF profile image
MaryFAdministrator

Here is what I have found for you:

lupus.org.uk/online-help/un...

lupus.org.uk/online-help/un...

MaryF

in reply toMaryF

Thankyou xx

in reply toMaryF

They were so helpful, Thankyou

Hughes-Comrade profile image
Hughes-Comrade

I have APS. I'm really wondering if I now have Lupus. I know that is rare to have it secondary, but I have many symptoms.

I asked my Hema/Onc about donating blood and not a good idea. I asked about my kidneys and he said yes they wash out pretty good.

Ray46 profile image
Ray46 in reply toHughes-Comrade

Hmmm, with you on not donating blood (after all we have a disease of the blood with aetiology still not completely known), not sure about donating kidneys though - when you read up on APS Nephropathy and the type of damage coupled with the difficulty identifying it (without a biopsy which is very dangerous if it's there) I am not sure it's a good idea. Same goes for any organ - again, we have a disease of the blood, which may affect any organ, and which is still not completely known.

in reply toRay46

Good point

Hughes-Comrade profile image
Hughes-Comrade in reply toRay46

I understood that if your kidneys are in good shape then they can be cleansed out. That was the simple explanation. I'm sure the qualification is much more detailed.

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