Organ donation and giving blood - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,402 members10,612 posts

Organ donation and giving blood

7 Replies

Am I right in thinking that I won't be able to give blood or donate organs because I have APS and possible lupus SLE?

7 Replies
MaryF profile image
MaryFAdministrator

Here is what I have found for you:

lupus.org.uk/online-help/un...

lupus.org.uk/online-help/un...

MaryF

in reply toMaryF

Thankyou xx

in reply toMaryF

They were so helpful, Thankyou

Hughes-Comrade profile image
Hughes-Comrade

I have APS. I'm really wondering if I now have Lupus. I know that is rare to have it secondary, but I have many symptoms.

I asked my Hema/Onc about donating blood and not a good idea. I asked about my kidneys and he said yes they wash out pretty good.

Ray46 profile image
Ray46 in reply toHughes-Comrade

Hmmm, with you on not donating blood (after all we have a disease of the blood with aetiology still not completely known), not sure about donating kidneys though - when you read up on APS Nephropathy and the type of damage coupled with the difficulty identifying it (without a biopsy which is very dangerous if it's there) I am not sure it's a good idea. Same goes for any organ - again, we have a disease of the blood, which may affect any organ, and which is still not completely known.

in reply toRay46

Good point

Hughes-Comrade profile image
Hughes-Comrade in reply toRay46

I understood that if your kidneys are in good shape then they can be cleansed out. That was the simple explanation. I'm sure the qualification is much more detailed.

Not what you're looking for?

You may also like...

Giving Blood

The Blood Bank called my husband and I about giving blood.   We told them I had APS and the caller...
kbmis003 profile image

Giving advice.....

I got asked today to talk to someone in Scotland as a friend recognised symptoms I've mentioned...
Suzypawz profile image

Blood test, blood spots and rashes

i few weeks ago i told you about the red blood spots i have and rash, well my doctor did a blood...

Sticky Blood and Covid

Hi I had positive antibody tests for two out of the three causing APS and was told by a...

APS and blood work

Hi :) I have a question to those knowledgable in the topic. Besides the positive antibodies does...
Or81 profile image

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
HollyHeski profile image
HollyHeskiAdministrator
lupus-support1 profile image
lupus-support1Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.