Hi all, I've been medicated with aspirin and hydroxychloroquine for some time now after a retinal vein occlusion and then subsequent odd symptoms which led to them discovering I have Lupus ANTI- DSDNA antibodies.
I feel much less exhausted than I did back then when all this began, and I can feel when I have missed a hydroxy tablet.
Unfortunately because I live in Tyne and Wear and DrSangle (originally I was under ProfK) is in London....I found it increasingly difficult to attend , aswell as appointments being with nurse rather than the Dr which although they are lovely, to me I want to see the Dr afyer paying through the nose originally and still being a bit iffy with blood results....anyway....
We emigrate to Australia 30th April...and I won't see Dr Sangle or the nurse before I go....anyway, I believe that I should be given heparin for this journey. I rang up the hospital to ask and got no follow up response that was a while ago now.
Does anyone have any links from NICE which I could possibly include in a letter to request I be given heparin to fly with?
Am I correct thinking I should be given heparin- 7/8 hr flight then straight onto a 14hr flight?
Thanks all..if anyone can help with wording a letter I would be very very grateful.
Thanks alot everyone.