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Hughes Syndrome APS Forum

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All posts for December 2016

APS and neurological symptoms - article

A while ago someone posted a link to recent study linking neurological symptoms and APS. I have an appointment with the heamotologist this morning, my bloods...

A while ago someone posted a link to recent study linking neurological symptoms ...

Maybells

•7 years ago

6 Replies

from the newspapers

1....

MaryF

Administrator•7 years ago

4 Replies

Here I go thinking again.... anyone else under extreme stress when this diagnosis was made...read on

When I was diagnosed it was when I was covering three other people's jobs and had a leader that was absolutely inadequate. It was holiday season, frustrating...

When I was diagnosed it was when I was covering three other people's jobs and ha...

Wittycjt

•7 years ago

14 Replies

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update...

I can't believe it's been a whole year since I last wrote on here, my last comment mentioned I was pregnant with twins (fourth time lucky) and I am happy to...

I can't believe it's been a whole year since I last wrote on here, my last comme...

kirstyleigh

•7 years ago

3 Replies

Giddy spells

At the moment I am experiencing a completely different type of dizzy spell so far has lasted for 2 days non stop. It isn't my usual APS type of giddiness. I...

At the moment I am experiencing a completely different type of dizzy spell so fa...

Jolevans

•7 years ago

3 Replies

Dementia and hughes syndrome

I have Hughes syndrome and raynards and high cholesterol high blood pressure fybromyalgia severe depression and been having test for dementia I was told...

I have Hughes syndrome and raynards and high cholesterol high blood pressure fy...

Kelly71

•7 years ago

17 Replies

At what point should I consider ER ir Doctor.

Hi, as some of u may know I have a strong dislike for ER's. Especially the ones available to me. I got sick about 3 days ago. I have had some of the worst...

Hi, as some of u may know I have a strong dislike for ER's. Especially the ones ...

SoulRebel-APS

•7 years ago

10 Replies

Lupus Anticoagulant Test on anticoagulant therapy?

Hello all, I am on anticoagulant therapy and intend to test for LAC. I have read over the internet that it might give false positive. If this is true, what...

Hello all, I am on anticoagulant therapy and intend to test for LAC. I have rea...

HumayunJ

•7 years ago

3 Replies

Having an operation to remove my Gallbladder

Hi Am slightly worried I'm going in for a removal of my Gallbladder on 10th January 2017 Hopefully they will remove this by Keyhole, Hospital are aware of my...

Hi Am slightly worried I'm going in for a removal of my Gallbladder on 10th Janu...

Hidden

•7 years ago

10 Replies

Scott: New to Hughes

I really want to thank everybody for responses and help. I keep going back and going over the responses. Still with some brain fog, I go keep going back and...

I really want to thank everybody for responses and help. I keep going back and g...

Scottc

•7 years ago

2 Replies

APS specialists

Is there a link to U.S. APS specialists? I'm hoping there is one in Alaska. Thanks.

Is there a link to U.S. APS specialists? I'm hoping there is one in Alaska. Than...

Switch81

•7 years ago

5 Replies

Itchy skin update

Thank you all for your caring responses! I'm 3000 miles away from home on Holiday! Had a ball in spite of some kind of Liver problem! I spoke to my doctor in...

Thank you all for your caring responses! I'm 3000 miles away from home on Holida...

Debbweb01

•7 years ago

1 Reply

Secondary Anti Phospholipid Syndrome

Im in the San Antonio area of Texas, USA. 47 year old Caucasian female. I was very recently diagnosed with secondary anti phospholipid syndrome . ( 12 week...

Im in the San Antonio area of Texas, USA. 47 year old Caucasian female. I was...

KellyInTexas

Administrator•7 years ago

18 Replies

Itching Continued/ Update

Well Mary, Notsofad, & Mentor/ Admin! You gals r all right and I am wrong! I'm 3000 miles away from home and things happening! My Doctor just called me from...

Well Mary, Notsofad, & Mentor/ Admin! You gals r all right and I am wrong! I'm 3...

Debbweb01

•7 years ago

17 Replies

Dizzy/light headed after warfarin dosing anyone?

Although my INRs have been good. I find that sometimes after I take my warfarin this happens. I am curious if this happens to others. Also sometimes I get very...

Although my INRs have been good. I find that sometimes after I take my warfarin ...

Wittycjt

•7 years ago

7 Replies

28 years with sticky- blood Syndrome

Hi all , wish I'd found this site a long time ago , feel such alone with my syndrome , and being on warfarin for the last 28 years , I should know it all...

Hi all , wish I'd found this site a long time ago , feel such alone with my synd...

andipandi1964

•7 years ago

12 Replies

Rituxan (Rituxamab) - Worth looking into with your doctor to help with APS symptoms (especially headaches)

I was first diagnosed with APS over 8 years ago. The headaches have been my primary complaint the whole time, as I never had them at all before being...

I was first diagnosed with APS over 8 years ago. The headaches have been my pri...

10yearsandcounting

•7 years ago

1 Reply

Questions and anwers

hi everyone, firstlyi have my APS appt this week and was wondering if there is any questions that I should be asking also I may hav an answer for my increasing...

hi everyone, firstlyi have my APS appt this week and was wondering if there is a...

dawnzy

•7 years ago

2 Replies

A few things from the newspapers

1....

MaryF

Administrator•7 years ago

1 Reply

Headaches

Is normal always have headache when you have Hughes Disease? My INR is always around 2.6 to 3.1. I had a stroke in 2007, my blood spec and GP does not I still...

Is normal always have headache when you have Hughes Disease? My INR is always ar...

sperling

•7 years ago

9 Replies

Professor Graham Hughes' Monthly Blog November 2016

BLOG – November 2016 Good and bad! November saw the publication of the 2nd edition of my book “Hughes Syndrome. A patient’s Guide”. Wonderful stories of two...

BLOG – November 2016 Good and bad! November saw the publication of the 2nd edit...

MaryF

Administrator•7 years ago

12 Replies

Going crazy with the itching

I know I've written and asked b4, but does anybody do anything for itching relief and if u do PLEASE TELL ME WHAT TO DO!!! My doc says itching is not part of...

I know I've written and asked b4, but does anybody do anything for itching relie...

Debbweb01

•7 years ago

18 Replies

Thoughts about Xarelto and APS

I was put on to Xarelto in Hospital after an unprovoked jugular vein DVT. Initially treated with heparin. As it turned out I eventually tested positive twice...

I was put on to Xarelto in Hospital after an unprovoked jugular vein DVT. Initia...

Puska

•7 years ago

13 Replies

Does APS cause nerve pain?

I've had APS for nearly 30 years and been on Warfarin for about the last 20. Recently, I have terrible pain in my left arm keeping me up at night. Cervical...

I've had APS for nearly 30 years and been on Warfarin for about the last 20. Re...

olleberj

•7 years ago

8 Replies

Looking for specialist for Hughes around Baton Rouge LA

Hello! I am looking a specialist for Hughes syndrome around Baton Rouge LA or if I need to go out of state any recommendation on a DR. or a clinic. I would...

Hello! I am looking a specialist for Hughes syndrome around Baton Rouge LA or if...

Scottc

•7 years ago

25 Replies

Consultant for Hughes / APS

I live in the South Wales area. Can anyone recommend an APS Specialist in my area please. was diagnosed with it about 2 years ago but my symtoms are really bad...

I live in the South Wales area. Can anyone recommend an APS Specialist in my are...

Magoowood

•7 years ago

7 Replies

Fragmin

Good Morning All .... id like to ask if anyone has ever collapsed while taking fragmin shots please as any information would be helpful thankyou .

Good Morning All .... id like to ask if anyone has ever collapsed while taking f...

jilly50

•7 years ago

11 Replies

New to Hughes Syndrome

Hello. I am new to the site. I have been sick for couple year and kept getting worse. My symptoms was leg pain, confusion, memory problems, avasular...

Hello. I am new to the site. I have been sick for couple year and kept getting w...

Scottc

•7 years ago

31 Replies

Interesting paper on Fibromyalgia/Thyroid

1. http://onlinelibrary.wiley.com/doi/10.1111/1756-185X.12964/full MaryF

MaryF

Administrator•7 years ago

9 Replies

How much plaquinil do you...

Take and how often?

Wittycjt

•7 years ago

9 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for December 2016

APS and neurological symptoms - article

from the newspapers

Here I go thinking again.... anyone else under extreme stress when this diagnosis was made...read on

update...

Giddy spells

Dementia and hughes syndrome

At what point should I consider ER ir Doctor.

Lupus Anticoagulant Test on anticoagulant therapy?

Having an operation to remove my Gallbladder

Scott: New to Hughes

APS specialists

Itchy skin update

Secondary Anti Phospholipid Syndrome

Itching Continued/ Update

Dizzy/light headed after warfarin dosing anyone?

28 years with sticky- blood Syndrome

Rituxan (Rituxamab) - Worth looking into with your doctor to help with APS symptoms (especially headaches)

Questions and anwers

A few things from the newspapers

Headaches

Professor Graham Hughes' Monthly Blog November 2016

Going crazy with the itching

Thoughts about Xarelto and APS

Does APS cause nerve pain?

Looking for specialist for Hughes around Baton Rouge LA

Consultant for Hughes / APS

Fragmin

New to Hughes Syndrome

Interesting paper on Fibromyalgia/Thyroid

How much plaquinil do you...

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