Interesting paper on Fibromyalgia/Thy... - Hughes Syndrome A...

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Interesting paper on Fibromyalgia/Thyroid

MaryF profile image
MaryFAdministrator
9 Replies

1. onlinelibrary.wiley.com/doi...

MaryF

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Thank you Mary. At last medics are linking these different diseases. I think it can go much further. Just a personal opinion of course. 'M'

MaryF profile image
MaryFAdministrator in reply to

Agreed, the testing for Thyroid is so poor, many find with their own private testing, that a very clear Thyroid problem shows up! MaryF

in reply toMaryF

One can only hope there will be more rigorous testing in the future. Also, testing DNA will become part of diagnosis. Again just my personal opinion. Only to be considered to help with diagnosis and not used for other purposes. 'M'

Puska profile image
Puska

I tested out of range TPO antibodies over 20 years ago and with clinical hypothyroidism. Never had fibromyalgia though. I seem to have more blood and skin issues.

MaryF profile image
MaryFAdministrator in reply toPuska

Yes you passed a test, the trouble is, those that don't pass the rather unreliable TSH test and who's doctor does not think to look for Thyroid Antibodies, often get wrongly labelled. MaryF

Puska profile image
Puska

Auto immune is rampant in our family. Four generations of women with one or two of RA, Hashimotos, SLE, APS. I seem to have been the 'luckiest' by scoring 3 of them. I am the third 'generation' and niece is the 4th. I don't think Drs take Thyroid issues seriously enough. And why do they only treat the symptoms (adding thyroxine) and not the cause - flaky immune system. One Rheumatologist said every woman seems to have some kind of thyroid issue. Arrogant misogynist 'swear word'. I felt like reaching over his too large desk and slappping him.

Fra22-57 profile image
Fra22-57

I have 3 auto immune diseases including APS and when thyroid has been tested they say it's ok.can it be if you have fibromyalgia like me

MaryF profile image
MaryFAdministrator in reply toFra22-57

I had various tests done, at my own expense beyond TSH which showed up my thyroid problems MaryF

MaryF profile image
MaryFAdministrator

and the narrow and unreliable testing for thyroid problems in the first place. MaryF

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