Rituxan (Rituxamab) - Worth looking i... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,404 members10,613 posts

Rituxan (Rituxamab) - Worth looking into with your doctor to help with APS symptoms (especially headaches)

10yearsandcounting profile image
1 Reply

I was first diagnosed with APS over 8 years ago. The headaches have been my primary complaint the whole time, as I never had them at all before being diagnosed with APS. I've tried everything imaginably possible to relieve the headaches including watching my INR closer (my target is 3.0 to 4.0) and going to 3 different Neurologists trying over a dozen different headache meds that didn't work. I even tried Xarelto (which resulted in me having a stroke 7 months later) and Lovenox shots (same thing as Fragmin) with no luck.

However, I just finished my first series of four I.V. Infusions of a drug called Rituxan (Rituxamab) that was recommended by several specialists, including those at the Mayo Clinic in Minnesota. I am excited to say for the first time in 8+ years, I'm seeing a change in the severity of my headaches. Doctor says it will take 2-3 months to see in my blood tests how well the Rituxan is eliminating the APS cells in my body, but it has a proven track record to work. Most likely we will need to do another series of infusions in February, but I'm ready for it based on the results I'm already seeing and feeling.

Rituxan is a Biotherapy, and not Chemotherapy, so it is much safer. I had no side effects at all from receiving the Rituxan.

It might be worth asking your doctor about this Rituxan. So far, I'm a believer in it that it works.

Written by
10yearsandcounting profile image
10yearsandcounting
To view profiles and participate in discussions please or .
Read more about...
1 Reply
MaryF profile image
MaryFAdministrator

Different drug regimes suit different people, one size does not fit all, as has been shown in your case, so glad something is currently working for you. Thank you for the up date. MaryF

Not what you're looking for?

You may also like...

Any other hope for relief?

I've had APS for over 8 years now. Aside of at least 5 episodes of DVT's / PE's, I've also had a...

APS & Severe Diverticulosis? or anything similar

Has anyone experienced or come across severe Diverticulosis or anything similar in relation to APS?...
JPMcGee75 profile image

Professor Graham Hughes' Blog October 2017

BLOG – October 2017 In October, I was a guest speaker in Porto, Portugal. It was at...
MaryF profile image
Administrator

Is aspirin enough?

Hi, I was diagnosed with APS this past summer and told to take baby aspirin once a day. I was...
NE27 profile image

Unstable INR, Rashing Accompanying Migraines, and Hematologist considering Rituxan or Cytoxan- Reasonable?

*I'm now at 15 mg warfarin 3 times a week and 15mg 4 times a week * target INR is set at 3.5 with...
KellyInTexas profile image
Administrator

Moderation team

See all
HollyHeski profile image
HollyHeskiAdministrator
lupus-support1 profile image
lupus-support1Administrator
KellyInTexas profile image
KellyInTexasAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.