Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for July 2015

Young(ish) APS patients?

Hey everyone, I'm new and wondering if anyone on here was diagnosed with APS when they were in their teens or younger? Or if you know anyone who was? I was...

Hey everyone, I'm new and wondering if anyone on here was diagnosed with APS whe...

disloyalorder

•9 years ago

11 Replies

I have just read "Sticky Blood Explained" by Kay Thackray

As this book was recommended so many times on this site, I decided I had to read it--purchased it on Amazon.com, and read it today. She certainly had a really...

As this book was recommended so many times on this site, I decided I had to read...

mozelle

•9 years ago

3 Replies

Trust me I'm a doctor.... 'Sticky blood' & recognising a DVT

Should there be a link to the Hughes Foundation on this page? http://bbc.in/1O72zHE...

Should there be a link to the Hughes Foundation on this page? http://bbc.in/1O7...

loppylou68

•9 years ago

4 Replies

Want to take advantage of all our features? Just log in!

2015 APS Hughes Syndrome Foundation Patients Day Videos

I learned a lot from this today : https://www.youtube.com/watch?v=dRZuajEjfPY&list=PLsOlR9d1jRjSvgIr_chYOdEwoV6rrD5yf&index=4

I learned a lot from this today : https://www.youtube.com/watch?v=dRZuajEjfPY&...

loppylou68

•9 years ago

2 Replies

What Questions should I ask at my next appointment....

My first appointment since I started on treatment for APS is next week ( at Guys )and I feel overwhelmed at the though of what I need to ask is there a...

My first appointment since I started on treatment for APS is next week ( at Guys...

loppylou68

•9 years ago

2 Replies

Statins and APS what are your thoughts....?

Should people diagnosed with APS take Statins as part of the treatment ? There are so many views out there what are your thoughts ?...

Should people diagnosed with APS take Statins as part of the treatment ? There a...

loppylou68

•9 years ago

7 Replies

New to forum. Love some advice!!

Hi all, I am new to the forum and would really appreciate some advice. Bit of back history.... I have 3 children but have also had 4 miscarriages all before...

Hi all, I am new to the forum and would really appreciate some advice. Bit of b...

Nattylioness

•9 years ago

24 Replies

please explain 'charity' medical

I've been on this forum for about a year, and it's been helpful. Since I am from the US, and not the UK, I am not too familiar with the medical system there....

I've been on this forum for about a year, and it's been helpful. Since I am fro...

mozelle

•9 years ago

3 Replies

Skin Pigmentation

Hi Everyone, I recently have been on holiday and whilst enjoying some sunbathing my wife noticed that a large patch in the middle of my back was not getting...

Hi Everyone, I recently have been on holiday and whilst enjoying some sunbathin...

Rob79

•9 years ago

4 Replies

Photo

How do I upload a photo to my profile please?

Cushions

•9 years ago

4 Replies

Inr self testing

Hello please can anyone tell me how I go about getting a self testing machine ?

Cushions

•9 years ago

21 Replies

New and confused

Anyone on xarelto for aps? I have been recently diagnosed and have seen 2 doctors a rheumatologist and hematologist, I'm pretty sure mine are arterial because...

Anyone on xarelto for aps? I have been recently diagnosed and have seen 2 doctor...

determinedandstrong

•9 years ago

13 Replies

Question regarding hughes syndrome

I was diagnosed as being positive for a blood clotting disease, ( clot too much ) following multiple late stage miscarrages.. I was told nothing to worry about...

I was diagnosed as being positive for a blood clotting disease, ( clot too much ...

lisajackson

•9 years ago

6 Replies

INR Level Low

I saw several posts that people feel dizzy, fatigue and just plain off when their INR levels are low or high. I told my wife a few days ago I was very fatigued...

I saw several posts that people feel dizzy, fatigue and just plain off when thei...

Hidden

•9 years ago

14 Replies

APS

Hi whent to Sheffield on Thursday to see a specialist but it was not a specialist in APS but she was nice and cos I had been having a bad head for 7 days she...

Hi whent to Sheffield on Thursday to see a specialist but it was not a specialis...

Lesley61

•9 years ago

4 Replies

Huhghes Syndrome and a whole lot mine!

I have been diagnosed with Hughes Syndrome 6 years ago. Just went to the Hellen Diller Cancer Center----UCSF. They say so few have Hughes and even rarer in...

I have been diagnosed with Hughes Syndrome 6 years ago. Just went to the Hellen ...

cleanerug

•9 years ago

22 Replies

Hello APS family and friends

I just wanted to share a wonderful little APS Book with you all, that you can order online. The book is only 100pages and is Authored by Dr. Graham Hughes and...

I just wanted to share a wonderful little APS Book with you all, that you can or...

Lyndsaylou

•9 years ago

11 Replies

Can women with lupus anticoagulant positive become pregnant?? Which specialist Dr do we need after gynaecologist??pls help

I had miscarriage in April 15.. When I was nearly 10 weeks pregnant after tests it shows lupus anticoagulant positive and to wait for three months & repeated...

I had miscarriage in April 15.. When I was nearly 10 weeks pregnant after tests ...

Navshad

•9 years ago

9 Replies

Changing inr target???

Hi everyone! Can I ask u some advise please. I have noticed that I get headaches/brain ache (if that makes sense) when my inr starts to fall to the lower end...

Hi everyone! Can I ask u some advise please. I have noticed that I get headache...

gemgemz

•9 years ago

10 Replies

Paradaxa or Dabigitran anyone on this for APS

I was on Clexane injections which worked great but I was losing my hair. I went Carelto which didn't work as well. I just switched to pardaxa/Dabigitran. It...

I was on Clexane injections which worked great but I was losing my hair. I went ...

designer16

•9 years ago

Letter from GP

Hi there, I have just received a letter from my GP stating that due to new recommendations from now on I have to take my yellow warfarin book into the surgery...

Hi there, I have just received a letter from my GP stating that due to new recom...

MaryH

•9 years ago

8 Replies

Today I had a haematologist appt…..

I have had my chest pain investigated and it appears that I have had a clot on my spleen. I was a bit gobsmacked!! it will resolve in its own good time...

I have had my chest pain investigated and it appears that I have had a clot on m...

Ozchick

•9 years ago

9 Replies

Plaquenil / hydroxychloroquine shortage update and a question

Hi all - There's been talk on several of the HU boards regarding the shortage of Plaquenil and hydroxychloroquine. Since I've only been able to tolerate the...

Hi all - There's been talk on several of the HU boards regarding the shortage o...

milkwoman

•9 years ago

12 Replies

Hydroxychloroquine

Morning sorry being lazy I am now on Quinoric 200mgs which came in a plain box from the pharmacy just name etc Am I right in thinking that Quinoric doesn't...

Morning sorry being lazy I am now on Quinoric 200mgs which came in a plain box f...

daisyd

•9 years ago

8 Replies

Upset Stomach

Hi All Yesterday and today I have had an upset stomach (no diarrhea, more constipation). The upset stomach is a sharp pain that comes in spurts and goes away...

Hi All Yesterday and today I have had an upset stomach (no diarrhea, more const...

ppy1310

•9 years ago

5 Replies

INR and hot weather

Hi there peeps! I wanted to know if the recent hot weather in the uk will affect my inr levels and if so, whether it will raise or lower them? I work in a...

Hi there peeps! I wanted to know if the recent hot weather in the uk will affect...

Gerardina

•9 years ago

9 Replies

zoladex and aps

hi there has anyone been diagnosed with hughes also been put on zoladex for other reasons?

hi there has anyone been diagnosed with hughes also been put on zoladex for othe...

adddiee

•9 years ago

2 Replies

Severe pain in head

Hi I wonder if any one can give me advice I have a sharp relentless pain in the back left side of my head My INR is in good range My GP ordered a CRP test...

Hi I wonder if any one can give me advice I have a sharp relentless pain in the ...

mully

•9 years ago

10 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for July 2015

Young(ish) APS patients?

I have just read "Sticky Blood Explained" by Kay Thackray

Trust me I'm a doctor.... 'Sticky blood' & recognising a DVT

2015 APS Hughes Syndrome Foundation Patients Day Videos

What Questions should I ask at my next appointment....

Statins and APS what are your thoughts....?

New to forum. Love some advice!!

please explain 'charity' medical

Skin Pigmentation

Photo

Inr self testing

New and confused

Question regarding hughes syndrome

INR Level Low

APS

Huhghes Syndrome and a whole lot mine!

Hello APS family and friends

Can women with lupus anticoagulant positive become pregnant?? Which specialist Dr do we need after gynaecologist??pls help

Changing inr target???

Paradaxa or Dabigitran anyone on this for APS

Letter from GP

Today I had a haematologist appt…..

Plaquenil / hydroxychloroquine shortage update and a question

Hydroxychloroquine

Upset Stomach

INR and hot weather

zoladex and aps

Severe pain in head

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