Hey everyone, I'm new and wondering if anyone on here was diagnosed with APS when they were in their teens or younger? Or if you know anyone who was?
I was diagnosed when I was a teenager after being hospitalised with a PE. This was eight years ago. I guess I was lucky because I didn't really have many symptoms before, but when the PE happened the doctors did the anti-cardiolipin/lupus anticoagulant/AB2GP tests straight away, and I didn't go through years struggling for a diagnosis.
It has been quite an isolating experience though, as I've not had anyone my own age to talk to who's gone through anything similar. I was wondering if people like me were out there?