I'm apologising for the long winded post but I really need some fellow sufferers advice if possible please
Ok so I was diagnosed 2 year ago with Hughes and Sjorgrens (excuse the spelling) after blood clots were discovered in my leg, shortly started on warfarin
About 6 months later some more extensive blood tests diagnosed me positive for connective tissue disease, which from my understanding is lupus and rheumatoid arthritis
Anyway after fighting tooth and nail I got to see a specialist named on the Hughes website and they done lots more tests yesterday I seen one of her registrars who informed me that the connective tissue disease and morphed itself into hughes and sjorgrens (again excuse the spelling) which I already had before my diagnosis of connective tissue disease, then asked me how my raynauds is?!! I didn't even know I had raynauds!! And theres never been anything on any hospital letters about this!!
My question really is can connective tissue disease evolve and you not have it anymore or does it just keep vanishing from blood tests and reappear from time to time? I feel very confused right now I am going to ring the specialist up tomorrow just thought if I could do that armed with a little bit more information then I would sound less neurotic
Thank you lotsly