Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for May 2015

INR self testing

Hello, I have been diagnosed with APS for nearly ten years and I'm looking into doing self testing.my doctors is fully behind me and will provide the strips...

Hello, I have been diagnosed with APS for nearly ten years and I'm looking into...

Mctommyd

•9 years ago

7 Replies

worried

After a journey that included a GP that refused to believe I had APS even after Prof D, Cruz wrote with my diagnosis, being struck off by said GP, seeing...

After a journey that included a GP that refused to believe I had APS even after ...

donnabrain

•9 years ago

9 Replies

Lupus Anticoagulant

Hi, I've recently been diagnosed with Lupus Anticoagulant is this the same as APT or Hughes Syndrome? I'm waiting for haematology appointment so don't really...

Hi, I've recently been diagnosed with Lupus Anticoagulant is this the same as AP...

Christine7

•9 years ago

17 Replies

Want to take advantage of all our features? Just log in!

Hello Everyone! Hoping Today has been a Good One!

It is Post 8 months since I was diagnosed with APS. I'm currently taking 3.5 mg of Warfin, 200mg Plaquinel, Cardio-Tex Vitamin, Liptor 20mg & Synthroid. I...

It is Post 8 months since I was diagnosed with APS. I'm currently taking 3.5 mg ...

GirlfromTennessee

•9 years ago

4 Replies

My consultant has taken me off warfarin.

All my blood tests have been negative and he cannot understand why i was put on them. I am being tested every 4 weeks so he can keep an eye on me. He has also...

All my blood tests have been negative and he cannot understand why i was put on ...

Hidden

•9 years ago

10 Replies

do swollen feet and ankles have anything to do with aps?

As I've posted before, I have Factor V Leiden and APS. I've had spontaneous fractures in my leg, DVT, torn tendons, plantar fasciitis. Now a new problem and...

As I've posted before, I have Factor V Leiden and APS. I've had spontaneous fra...

mozelle

•9 years ago

5 Replies

Raised CRP

Hi all, I have primary APS and am on warfarin INR range 3-4. I also have raynauds. Along with this delightful condition I get regular joint and muscle pain...

Hi all, I have primary APS and am on warfarin INR range 3-4. I also have raynau...

Tinythepanda

•9 years ago

3 Replies

Aps specialist Sydney

Just wandering if anyone knows of a specialist in Sydney area. Very hard to find someone who is a aps specialist.

Just wandering if anyone knows of a specialist in Sydney area. Very hard to find...

Cookie83

•9 years ago

1 Reply

APS at 27 !!!

Hi there,, Firstly a big thank you to all who post regularly here....its very informative and helps me to learn and be prepared for the days to come,,,, I...

Hi there,, Firstly a big thank you to all who post regularly here....its very i...

Aps4Life

•9 years ago

8 Replies

Am I really the only one?

While inquiring about people in my immediate area who also have APS, my rheumy told me I am his only patient with APS of the brain. I still don't fully...

While inquiring about people in my immediate area who also have APS, my rheumy t...

mylafont

•9 years ago

29 Replies

Dr khamashta gone?

Does anyone know where he has gone? My appointment at the lupus centre at Guys has just been changed and I have been put under the care of Dr Sangle? When I...

Does anyone know where he has gone? My appointment at the lupus centre at Guys h...

louise78

•9 years ago

6 Replies

New article off the South Wales Evening Post

http://www.southwales-eveningpost.co.uk/rare-blood-disorder-cause-seizure/story-26474671-detail/story.html MaryF

http://www.southwales-eveningpost.co.uk/rare-blood-disorder-cause-seizure/story-...

MaryF

Administrator•9 years ago

1 Reply

Prayers and hope (for self testing)

I'm starting the process of getting my docs to prescribe self testing for me. I know this is going to be a long process, both on my education and getting...

I'm starting the process of getting my docs to prescribe self testing for me. I...

mylafont

•9 years ago

16 Replies

Jennifer

I am British, but living in Bulgaria. I have suffered from Hughes Syndrome knowingly for about 12years.

I am British, but living in Bulgaria. I have suffered from Hughes Syndrome know...

jennybooth

•9 years ago

4 Replies

remaining sight <0> <0> has finally gone folks!

Hi All, my sight has now failed on me all together, however i do have a roof over my head plus warm and food but most of all Water! So I' am greatfull for...

Hi All, my sight has now failed on me all together, however i do have a roof ove...

popshaw21

•9 years ago

7 Replies

Itching

I have severe itching all over my body. After scratching I grt small bumps. Doctor had no answers. Help!!

I have severe itching all over my body. After scratching I grt small bumps. Doct...

judygirl1943

•9 years ago

4 Replies

Liver for dinner!

Just had to share for other warfarin patients. I'm in the process of bridging for dental surgery on Monday. Which means tonight I get to have liver and onions...

Just had to share for other warfarin patients. I'm in the process of bridging fo...

GinaD

•9 years ago

8 Replies

Are most of the people on this site from the UK?

I started on this site about a year ago, but haven't posted for the last 6 to 8 months. Am back again. It seems most members are from the UK. Most...

I started on this site about a year ago, but haven't posted for the last 6 to 8 ...

mozelle

•9 years ago

12 Replies

has anyone had a problem with bone fractures?

As I've previously posted, I have APS and Factor V Leiden. I was diagnosed about one and a half years ago after a history of DVT several times in my leg. I...

As I've previously posted, I have APS and Factor V Leiden. I was diagnosed abou...

mozelle

•9 years ago

15 Replies

My girlfriend thinks she has Hughes syndrome

My girlfriend thinks she has Hughes syndrome she has had four Misscarages since March last year and found to have antibodies in her blood we have an...

My girlfriend thinks she has Hughes syndrome she has had four Misscarages since ...

martin290690

•9 years ago

19 Replies

Extreme itching

Does anyone get extreme itching on their legs and feet? Is this a by product of having APS? how do I stop this?

Does anyone get extreme itching on their legs and feet? Is this a by product of ...

UKWendy

•9 years ago

9 Replies

Help please - name of good specialist in Melbourne, Australia

Dear all, I am new to this forum and thought not officially diagnosed as yet, it appears I likely have secondary APS - have primary Sjogren's Syndrome. Is ther...

Dear all, I am new to this forum and thought not officially diagnosed as yet, it...

Hidden

•9 years ago

2 Replies

aPL...

I'm somewhat new to APS and often seen aPL written when referring to it. What does this stand for or mean?

I'm somewhat new to APS and often seen aPL written when referring to it. What d...

mylafont

•9 years ago

6 Replies

Travel

Hi, I am going on an 11 hour flight to San Fran from Heathrow, I am normally within the correct range 3.0 - 4.0 Target being 3.5, I have a self test machine...

Hi, I am going on an 11 hour flight to San Fran from Heathrow, I am normally wi...

bethw

•9 years ago

6 Replies

Dementia/Alzheimer's

My husband and I were having a discussion about how likely it is that I will get dementia/Alzheimer's due to having Hughes, can anyone help me out here, are...

My husband and I were having a discussion about how likely it is that I will get...

Molly100

•9 years ago

16 Replies

awaiting diagnosis

Not sure if this is the best place to post........ I've been ill for just over 2 1/2 years now. In that time I've had my appendix, gallbladder, and left ovary...

Not sure if this is the best place to post........ I've been ill for just over 2...

heather1983

•9 years ago

5 Replies

APS diagnosis and later symptoms

Hi, my name is Melissa. I will be 27 this up coming month. 3 years ago I misscarried at 9weeks, I delivered my first born child two years ago. He was born at...

Hi, my name is Melissa. I will be 27 this up coming month. 3 years ago I missca...

1HappyMom

•9 years ago

6 Replies

Self testing

Hi, just to advise for those who asked I had my application for self testing turned down by my local CCG as I didn't fit their criteria as being classed as an...

Hi, just to advise for those who asked I had my application for self testing tur...

lloydyuk

•9 years ago

18 Replies

APS

Hi been to the doctors on Thursday because I could not here any think he sed iv got fluid in my ears my left ones worse but told me just to leve it will go but...

Hi been to the doctors on Thursday because I could not here any think he sed iv ...

Lesley61

•9 years ago

17 Replies

Tingly buzzing??

A poor title way to describe the following I'm thinking. I had a cerebellar haemorrhage, amongst other things in jan 2013 and since just over a year ago I've...

A poor title way to describe the following I'm thinking. I had a cerebellar haem...

lloydyuk

•9 years ago

13 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for May 2015

INR self testing

worried

Lupus Anticoagulant

Hello Everyone! Hoping Today has been a Good One!

My consultant has taken me off warfarin.

do swollen feet and ankles have anything to do with aps?

Raised CRP

Aps specialist Sydney

APS at 27 !!!

Am I really the only one?

Dr khamashta gone?

New article off the South Wales Evening Post

Prayers and hope (for self testing)

Jennifer

remaining sight <0> <0> has finally gone folks!

Itching

Liver for dinner!

Are most of the people on this site from the UK?

has anyone had a problem with bone fractures?

My girlfriend thinks she has Hughes syndrome

Extreme itching

Help please - name of good specialist in Melbourne, Australia

aPL...

Travel

Dementia/Alzheimer's

awaiting diagnosis

APS diagnosis and later symptoms

Self testing

APS

Tingly buzzing??

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